Arlene Scott-Halpen
  • Female
  • Gouverneur, NY
  • United States
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  • Ted Granger

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Are you a Polio Survivor?
What year did you contract polio?
Do you have Post-Polio Syndrome?
When did you begin experiencing symptoms?
When I was 60-
List any assistive devices you are using...
Full Leg Brace Walker Cane & elec scooter
List any Polio Survivor Groups that you belong to online or in person.
Please describe how polio has changed your life.
I was 19 married 2 years Husband was in Air Force just had returned after 1 year of active duty in AFRICA. I really lost my balance and most of the time i would fall & yes I would break my bad leg a lot up to this date I have broken my left leg 31 times since 1960 Twice my femur that hurt
How did you find out about
Surfing the web

Comment Wall (4 comments)

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At 1:33pm on September 5, 2012, Susan Jean Mauro-Bemme said…

like you when "things" started happening in 1994 I was frantic.  After a fall, breaking my "good" ankle I began having sever fatigue and muscle loss.  It took until July of 1996 to get a diagnosis of PPS, which I had never heard of.

I was braced pretty much from head to toe. I was wheel chaired. I became divorced and no longer had my career. To put it gently I was a real mess.

I don't know if I slowed down from choice or just couldn't fight it any longer.

I will tell you it did go into a "remission" of sorts for about 16 years. I no longer needed assitive devices and used my chair ocassionally until a few months ago. It's raising its ugly little head again and I'm having a lot of fatigue mid day and find that the wheel chair when shopping comes in handy.  I am having a lot of medical problems which I will be putting in some kind of forum manner soon so that I can see if anyone else is now having these issues. I hope that this has helped you.  Any questions or just to "talk" please write.

At 12:52pm on August 26, 2012, Susan Jean Mauro-Bemme said…

I'm not sure I know how I contacted Polio.  I understand it's a hand to mouth type of germ, so I was probably just being a typical kid.  I was hospitalized for a very long time.

In 1994-96 after a major fall breaking my right leg, I had what the doctor termed rapid onset of PPS. I was braced much like you are but for some reason, mostly because I slowed way down it went into remission of sorts until recently. Its once again crept out of hiding and started tormenting me some. Write to me when you get a chance and we can share stories if you'd like. Regards, Susan

At 11:42am on August 18, 2012, Susan Jean Mauro-Bemme said…

Hi Arlene.  I hope this site brings you all the information and support your looking for.  If I can help in any way just let me know. Kindest Regards, Susan

At 8:16am on August 18, 2012, Ted Granger said…

Welcome to Polio Today - Class of '53 for me just prior to the release of the vaccine.



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