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At 9:13am on December 21, 2011, susan fuentez said…

Hi my friend! It is so nice hearing from you! I have really enjoyed our conversations this past year, and like you, I hope we can continue :) It has been a nice holiday around here I must say not as stressful this year as it has been in the past. We will be spending Christmas with family, aside from that it will b a very quiet Christmas. I am glad you are doing well, we must remember to take care of ourselves, and try to get rest when we can. I wish you and your family a blessed holiday! Take care my friend.... :)

At 9:34am on November 14, 2011, susan fuentez said…

Hi my friend! you've been busy! please don't forget to take care of yourself! It's nice of you brother to have thanksgiving! Usually I am the one who does all the cooking, for either davids family or my family... but not this year, my sister and bro in law will be arriving from denver nxt wk. They will be staying here at my house, but david is insisting we go visit his mom, who lives in Marfa tx. sigh. So the good thing is I will not be cooking. But it's tuff having to leave my sis here in my house... the only good thing is that my sis will be coming back for christmas and staying here with me again! :)))) not to sound mean, but i suppose we need to get david's visit with his mom out of the way! :) so relunctantly i will be going out of town.... the good thing is my family and I will be getting together on Sat... to start our Christmas shopping... i am so excited, but at the same time feeling a lil anxiety and overwhelmed, the holidays always do this to me.... What do you during the holidays to rest and take care of yourself???? Somtetimes our braces can hurt a lil more then help huh? I wear mine when I know I will be walking alot, but when I take it off i feel relieved, i suppose we need to keep trying to do what works for ourselves huh? It is hard to find shoes, and anything really to put on our feet, socks, slippers, those are also an issue... I am struggling to find something to keep my feet warm, nothing stays on, or warm. I have resolved to wearing 3 pairs of socks and always making sure i have lil rubber stoppers undersneath sure does make for lots of laundry! take care luv ya!

At 2:34pm on October 26, 2011, susan fuentez said…
HI Amy I am sorry you are not feeling well, I understand back pain, it last for days... it's tuff being in the condition we are in, we suffer the consequences for days... sometimes i just wish it wasn't this way but then again, I don't know anything different. Have you tried placing a heating pad on your back? Or maybe some sort of heating cream, such as tylenol "precise" or tiger balm, those two products help me, when my back is over worked, using those products along with rest, seems to help.I am glad you had a fun time though!  I hav'en't been in a bathing suit for years! I"ve always been self concoius also, although in my younger yrs, I just kinda did what i wanted. Now that i'm older I put too much thought into how others perceive me, i get looked at alot just by going to the grocery store, by all sorts of people children and adults. About a week ago i was in line at a grocery store, i was in a scooter, david had left to go get another item, while i was in line by myself, a man tried to cut in front of me... i forced myself back in line, this man was totally in my personal space, i'm probably just presuming, but I felt like he thought"oh well she's sitting anyway", I've never thought like that until this man tried to cut in line. David returned and stood in front of the man,  not being totally aware of what had happend, but still noticing the man was too close to me.... poeple can be so insensitive sometimes... and down rite rude! I've even had a man cut me off in a handicap parking spot, he got in it before me... and wasn't even handicapp, he didn't have a badge!!!! oh my word. I was so angry! It's tuff being who we are. But I believe we are two strong women!
At 3:01pm on October 24, 2011, susan fuentez said…
Hi AmY I hope you are doing well. I am doing fine, feeling pretty good these past few days.... I am still looking for someone to come and clean my home, although it has proven difficult.... so anyway life goes on. How is everything in your world? Are you getting ready for the cooler days? Here we've just been watching lots of football! lol
At 9:01am on October 12, 2011, susan fuentez said…
Hi Amy, I am glad your home and able to get some rest this week, sounds like you had a nice work week, despite being away from your family. Seeing friends is always nice. I am doing good, already planning for the holidays, turns out my sister and brother n law will be visiting for both holidays, they are bringing there big german shepard with them :( and yes, they stay here at my house. He sheds alot and the cleaning up after him, is tuff on me..  (he is an inside dog) david is basically forcing me to get someone to start coming to clean my house... I am not too happy about it,,,, but i guess it's time. I just don't have the heart to tell my sis she can't bring her dog. I love her too much. :) So aside from that, life is good, I am feeling much better... how have you been feeling???? Are you excited for your trip this weekend??? Sounds like so much fun!
At 5:17pm on October 4, 2011, susan fuentez said…
  1. Hi! As of today,I am feeling better, I've learned how to keep pain in my foot from starting, by keeping it warm. I also have been wearing my brace more which is adding to support that I really need, but you may be right, I have'nt considered tissue damage?? Hmm good suggestion...! I am sorry about your not being able to see Garth Brooks.. maybe another time will b good, the blessing is you've already met him! Oh please be careful on your trip, 8 hrs is a pretty long time but I do see the logic why you chose that route..How have you been feeling? I hope you and your small family are doing fine,,, and please be safe on your trip. take care.    
At 12:31pm on September 27, 2011, susan fuentez said…
That is so amazing to be able to meet your favorite artist! i Hope it all works out for you! Good luck! I am starting to feel better, I just know that I am not myself since the fall. I am weaker and it feels as if my foot is weaker. So I've been really careful and not doing too much. The scooter has been a great help.  I hope all is well for you and your family...:)
At 3:56pm on September 12, 2011, susan fuentez said…
Hi, thank you, yes I am feeling lots better, I know it will take awhile for myself to be back to normal but I am on my way! Oh believe me I know how you feel about using a scooter Ihad to tell myself over and over to use one at walmart, and there are still times I don't use one, but the bottom line is if I don't use one, I soo exhausted by the time we leave the store.  So now,I do use one often.... it's for the best. Wow you have a big month planned! I hope you are able to go see Garth Brooks he is awesome! And going to see some racing sounds like a great time! We aren't planning much of anything... simply just glad it's FOOTBALL SEASON!!!!!!!!! hooray! I love my dallas cowboys!!! How is your son doing in school? I hope all is well!
At 10:48am on September 9, 2011, susan fuentez said…
Thank you! Yes it is always a concern that we could fall and cause injury... I am doing much better now, after 2 wks of serious in home treatments.... although my bad foot does feel weaker now.... :( I know i did some damage to it..... the good thing is that David and I bought me a scooter. I've been using it around the house, and it already is a big improvement for my body..I'm proud of you for going to your son's school and helping out... the children learn soo much from persons like you & I.  I understand how you feel about how children firts react tou you that's how it was for me as a child care director... children were always intimidated by my apperance... eventually it was just the normal thing.... until I started falling down in front of them.... :(  That's when I knew it was time to call it quits... I didn't want them to become afraid of me... Despite all that yes, we are excellent role models.... we teach children to presevere, and to treat every one with dignaty and respect. Have a great weekend my special friend....:)
At 10:30am on September 1, 2011, susan fuentez said…
I wrote 10 yr ride home Lol that's EXACTLY how it felt! It was 10 hrs... :)
At 10:28am on September 1, 2011, susan fuentez said…
Hi Amy! how are you? Is your son getting settled into school? Around here things have been ok.... We went to colorado and yes it was soo beautiful over there, the weather was amazing.... however on our last morning their while David was loading the car, I went downstairs to make sure we hadn't left anything behind... as I was climbing down the last step my good knee buckled, causing me to fall. I somehow landed on my weakened foot.... ugh. It was so painful, the 10 yr ride home was so difficult. Needless to say my foot swelled up, causing severe bruising, I was terrified and thankful at the same time, that I didn't break it.... I can't even imagine.... once we arrived home, I was able to nurse it, I had to use my walker to get around, I felt like I needed my brace , but my foot was too swollen... so I had to be extra careful. As of today I am doing better, I am up and around, but it's so tuff just to lay in bed, when there are so many things to do... Due to my falling, my ankle feels really weak, and it seems as if my foot drop has increased.... sigh.  But on the bright side I am thankful I didn't cause more damage to my back. It was a huge reality check... I had been feeling pretty good until that point.... especially david getting on to me... he had Already helped me up the stairs and told me not to go back down those stairs there was no reason for me to.... I didn't listen... and here we were...... miserable on the ride home..... :(
At 10:52am on August 13, 2011, susan fuentez said…

Yes, 10lbs... i can relate to you... I love to eat also being home all day it's tuff staying out of the kitchen! Exercising is hard to do, the fatigue is really what sets in, I have to choose my activities if I do exercise I can't do much of anything the rest of the day, so I don't exercise, the chores and cooking needs to be done.....the struggles we face are sometimes so challenging arent they? only we ourselves know what is best for us. Wow 4th grade.. that great! I remember when my son was that age. Boy time does fly. When does school start over there?? Here it starts on the 22nd. We are a planning a trip on the 20th. David and I are driving up to Denver Colorado to visit my sister & bro n law. I am looking forward to gettting out for a lil while. My son won't be going, right now his job is more important, and also I need him to take care of my doggies. We will be gone a week, I am really happy. Do you ever get nerve pain??? I do lately alot in my feet.... hmmm.... pleaese write back soon, my special friend....

 

 

At 7:59am on August 10, 2011, susan fuentez said…
Hi Amy! I am doing well, I 've slowly been losing weight I've lost 10lbs so far! I am feeling good, but somedays are really tuff. It's good things have slowed down for you, although I understand your dilema about the crutches, and brace. I sometimes don't wear my brace either due to the restriction it gives me, also it changes my balance so when I do wear it my hips are in pain the next day. I wear it when I know I'm going to be walking a lil more then usual.Hopefully talking to your doctor will give you some resolution. I understand what you are goin thru our brace does give us a sense of security.  
At 7:37am on July 19, 2011, susan fuentez said…

Hi! I agree with you, our weight doesn't have really anything to do with our pain, and condition. I am sure if I continue losing weight, I will still have pain, however I do know that I will be more comfortable. I am just terrified  that my weight will contribute to more conditions that I can't bear to handle. I am on a low fat diet, I have been losing weight, steadly and slowly. When I do exercise, I do the Wii fit. I can't do all the exercises and activities but I do alot of them, I exercise for 30 min. I don't do it everyday, due to fatigue, and maintaining a house. I am forced to limit my physical activitiy. But doing  Yoga really helps with my back & hip pain. Do you do any form of exercise? I am so sorry, that your back is hurting, yes doing too much really does cause us to take a step backward. Hopefully your resting

enough before your trip. I like  that a pillow is all it takes sometimes to make us feel a lil better, my favorite therapy is a heating pad. :)))    It's hard to describe what we go thru, but it's nice to have someone who understands what our individual pain and thoughts are due to having polio.  Plkease take care my friend.

At 8:35am on July 14, 2011, susan fuentez said…
Hi Friend! I am so glad to hear, that you had a great time on your trip. Over here in Tx not much went on as far as celebration, due to the severe drought we are having, too many wild fires in our area, to be able to pop fireworks, there was a display but it being a monday, and hubs having to work the next day..... not much of a holiday. It was a quiet day, which I was hoping for...! My doctor visit went well, I'm still a lil confused actually. He said I was doing really good and looking really well also. I told him about my knees, and nerve pain, he said that for right now, keep moving a lil and keep losing weight, that maybe more weightloss will help the  knee pain, and he says it can also elieviate some of the nerve pain. I told him that I don't want to take so many meds, and that I'm trying other ways of finding comfort, I told him the therapys im doing, he seemed pleased, we mentioned a scooter, he said he'd reevaluate me again in 6 mths to see how I'm doing, he wants me to continue to lose weight. So please give me your opinion?????  I suppose if i lose weight and still complain of pain, then he will take action???>
At 10:03am on June 28, 2011, susan fuentez said…
Hello my friend! I am wishing you and your family a wonderful trip, full of fun, and hoping for your safe return. Talk to you soon! :)))
At 3:59pm on June 24, 2011, susan fuentez said…

Yeah, I suppose your right, I do really need to communicate about my pain... I know he is wanting to do an mri on my back... so i need to let him know I'm ready. I just dread going ,it's kinda like a reality check... i feel fine, but once I leave there i'm emotionally drained. I'm thinking of asking him to prescribe a sooter for me... their are days here at home when I can barely walk. I know it's time for me to communicate more to him, I do need lots of help!  Are you excited for your vacation?

At 8:12am on June 23, 2011, susan fuentez said…

Hi Amy, I actually go to see my doc tuesday, I am ready, along with my knee pain, I am also experiencing, lots of nerve, burning pain on and under my right foot. I think it's due to just doing too much. I hesitate letting my doc know all my symptoms cause I know what most pains are, and what contributed to it... I am not sure if I am doing the right thing, by not telling him everything. But I feel like this, for the rest of my life there will always be aches and pains, if I start with too many meds now, what condition will I be in; in 20 yrs?I also want to avoid surgery. I am already on lyrica, and take advils about twice a week, I also use heat and cold therapys,  so far I've done well. I think my biggest fault is my weight, (which I am working on) and my lack of rest.

We have so many issues in common, I too have trouble climbing in and out of tall vehicles...lol david has to help me into his truck all the time, my aunt bought me a stepping stool,so david and I can use, and my mom keeps one in her suv when for when I am with her! funny, do you think I am doing the right thing by not sharing everything with my doc????

At 7:54am on June 16, 2011, susan fuentez said…
Hi Amy I am so sorry about the ordeal at the airport, it's hard enough for us to be in a situation and place like that,let alone be put in an awkward posisition. I just don't get how people can be so ignorant sometimes... I am glad you are home and safe with your family. I wish more people would take the time to understand our condition. It's lonely sometimes.... Your trip is right around the corner! It sounds like so much fun! I bet your son is excited! I am not sure what our plans are for the holiday.. here in texas there is a severe drought, there will not be much of a celebration. David is wanting to visit his mom, i'm not sure if we'll be going due to our dogs, I just brought another one home :) so now I have 2 dogs to keep me company.... I honestly would like to stay home and get work done around the house, but who knows?? Take care my friend and I am glad your home.... :)
At 7:20am on May 27, 2011, susan fuentez said…
You are shott. I think it's a blessing for us to be smaller, I know it has helped me be a lil more flexible and easier to manage due to my size.. now if I can get the weight off! lol. I can only imagine the challenges you face, while traveling.. you are a tuff person. And you are handling everything so wonderfully. I just wish people had a better understanding of our condition. Do you own a scooter? I am thinking of getting one, I am able to walk everywhere, but the strain it puts on my back and hips makes it so difficult to get it all done. Also the scooter would help with my fatigue. Good thing though, I haven't had such a bad day where i am unable to walk in a long while. I'd like to say that I finally know how to take care of myself correctly........my medicare, begins in june... not too happy about that....       

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