susan fuentez
  • Female
  • Odessa, TX
  • United States
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Low dopamine levels
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Hi, im really curious, has any one ever been tested  for low dopamine levels?Does anyone have symptoms of low dopamine levels?It is my understanding that us a polio survivors may not be able to…Continue

Started this discussion. Last reply by susan fuentez Apr 27, 2016.

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Profile Information

Are you a Polio Survivor?
yes
What year did you contract polio?
1970
Do you have Post-Polio Syndrome?
yes
When did you begin experiencing symptoms?
age 37
List any assistive devices you are using...
cane, and brace on right leg
Please describe how polio has changed your life.
I have trouble explaining how it has changed my life, due to contracting the disease as a 2mth old infant. It's what lived, I was able to walk with a limp despite the weakness and maintain somewhat of a normal life. Now having post polio syndrome has affected me more, then the first onset of illness.
How did you find out about PolioToday.org?
searching for more information online about post polio syndrome

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At 11:17am on December 20, 2011, Amy Robinson said…
eMerry Christmas and Happy New Year to you and your family. I have enjoyed our online friendship and hope we can continue to write each other in 2012. We are in the midst of getting ready for Christmas, our whole family will be at my parents' house as we do each year. It has been a busy time for us, our church puts on a big Christmas pageant and this year Brian is the music director. He has done an amazing job putting together a program that is both beautiful and meaningful. I hope you are enjoying the Christmas season along with your family. Love, Amy
At 7:29am on November 23, 2011, Amy Robinson said…

Susan, I hope y'all have a happy and safe Thanksgiving with your husband's Mom. We are leaving this afternoon for my brother's place in Alabama, it's only about a 2 1/2 hour drive. My parents will be coming tomorrow afternoon. It should be a fun time. Once we get home I need to get serious about shopping for Christmas :):) The good news is my back is doing much better this week. I am trying very hard not to over do it and start the whole cycle over again. Love, Amy

At 6:19am on November 10, 2011, Amy Robinson said…

Hi Susan, sorry it took me so long to respond. I was out of town again last week in Alabama and this week trying to complete a ton of paperwork. Also there are some things going on professionally - good things I suppose - that are taking a lot of my time and energy to think about. I'll share with you when I have more time to write. My back is finally starting to improve and I am trying very hard to go easy on it as best I can, which means keeping my brace off and using my crutches to get around as much as possible. Normally I use my crutches around the house and my brace when I am out, but I've done a few errands and such on crutches. It's a little awkward beause I really don't have any shoes that fit my little left foot without my brace. I just put on a decent looking sock and leave it at that. My parents usually have Thanksgiving dinner at their place, but this year my brother and his family are hosting, so we will be spending the weekend down there. Do you have any plans for Thanksgiving yet? Love, Amy

At 1:56pm on October 25, 2011, Amy Robinson said…
Hi Susan, I'm so glad you're feeling good these days. We had a great time at the race the weekend before last, the weather was great and we spent way too much money on souvenirs! Unfortunately I think I overdid it with too much walking, and as a result my back has been hurting ever since, especially when I am sitting. Right now I wish we had a hot tub. There was one by the swimming pool at the hotel where we stayed in Charlotte and I really wanted to get in it, but I never did get up the courage. I brought my swim suit, but i was just too self conscious to actually wear it in public. I hoped maybe on Sunday morning there wouldn't be too many people in the pool, but it was full of people, kids mostly, and I wasn't ready to put my body "on display". People do stare at me and I wish i could learn to just ignore it. Anyway I'm hoping the back pain will get down to a more tolerable level this week, since I have to travel the week after. Brian is making sure I take it easy on my body, he has been doing all the cooking and house work. It seems odd, but it is least painful when I am standing with my crutches and good leg to support me. This takes all the pressure off of the left side of my body which is my smaller and most severely deformed side. I am taking some mild pain meds and praying. Love, Amy
At 6:48am on October 14, 2011, Amy Robinson said…

Susan, Glad to hear you're doing better. I think your husband is right, it's a good idea to get some help cleaning your house. I pay for house cleaning every 2 weeks and it's well worth the cost, especially with my work schedule. I sure do understand about the dog hair - we don't have animals but my parents have dogs and my mom has to use the vacuum cleaner all the time to keep their place clean! It's great you're going to have family visiting for the holidays, that always makes it more fun even though it's a lot of work getting ready. I feel like we are really blessed having my parents so close and my brother and his family only 2+ hours away.

We are leaving early tomorrow morning for Charlotte. The race is tomorrow night. We have a hotel for Saturday night and we'll come back Sunday afternoon. The weather forecast is good so we're hoping for a fun weekend. I know I'll be walking a lot so I have been trying to take it easy on my back this week. I haven't even had my brace on since Tuesday, I've just been using my crutches around the house.

Love, Amy

At 5:19am on October 10, 2011, Amy Robinson said…
Hi Susan, I'm glad your foot is doing better and you're getting some help by wearing the brace. I am still a little tired out from my travel last week, but it was a good trip overall. The place I was working is only about an hour's drive from where Brian and I went to college and where we lived for several years after, and I was able to meet up with a few friends who still live there. This should be a relatively easy work-from-home week and then it's off to Charlotte for the race this weekend. Love, Amy
At 12:00pm on September 28, 2011, Amy Robinson said…

I'm so sorry your foot is still giving you problems. Sometimes a fall can cause injury to the soft tissue inside and those kind of things can take months to really heal completely. I'm praying that is the case for you and there's not any permanent damage. Meanwhile I guess the only thing is to go easy on it, and I agree the scooter will help a lot with that.

A couple of times I've asked Brian about the Garth tickets, and he hasn't had much to say except he is still trying. It doesn't sound like he is having very much success and I don't want to bother him about it any more. We are looking forward to the race in Charlotte which is October 15. Our son is a big racing fan too and he is very excited about it. Meanwhile I have another trip coming up for work, this time to Charlottesville, VA next week. I looked into flying, but I would have to change planes or else fly to Washington and drive 2+ hours. I decided to drive up there. I can make it in about 8 hours and that way I have my own car for the week.

I hope you are otherwise enjoying the Fall and maybe some cooler weather. Love, Amy

 

At 2:31pm on September 13, 2011, Amy Robinson said…

I keep trying to convince myself that it "makes sense" to at least use the scooter at the store ........ maybe someday. Too much walking does affect me, but not in the same way as you. I don't get tired, I just get a lot of back pain if I overdo it with the walking. I know that will happen when we go to the race, but I love it so much I'm willing to put up with the pain afterward. Besides, my husband gives me great back massages :):) We used to go to the race every year when they came to Nashville, but they don't have the Cup race there anymore. Still we try to get to one each year, and this time it will be in Charlotte.

I am praying Brian can find a way to get tickets for Garth Brooks without having to spend a fortune. I have always been a *huge* fan. When Brian and I were dating in high school, he always played a Garth tape in his truck and I feel like we fell in love to those songs. When Garth "retired" in 2001 we went to his last concert at South Padre Island. It was cold and pouring down rain but I didn't care. It was just sooooo crowded, Brian let me sit up on his shoulders the whole time (several hours!). It was only later I saw the red mark where my brace was digging into the side of his neck all that time. Poor Brian, it must have hurt but he ever complained. After the show, Brian totally surprised me, he had managed to get us "VIP" passes to meet Garth Brooks! We had to wait outside a trailer in the rain for another 2 hours but finally we got to meet him. He was soooo nice. He posed for pictures with me and actually talked to us for a couple minutes. I was pregnant at the time but early enough that it didn't show. For some reason, Brian mentioned it and Garth patted my belly and said "Well God bless you and your little one". That did it - I knew if it was a boy his name would be Garth, and so it is!

 

At 2:18pm on September 12, 2011, Amy Robinson said…

Susan, I'm glad you're doing better after your fall, hopefully with some more time your foot will get back to "normal". I'm glad the scooter is working out for you. From time to time Brian tries to convince me to try a scooter, but I'm just not there yet emotionally. I can't even bring myself to use one of the store ones like at Wal Mart, even though I know it would make things easier for me. Right now I am busy with work, but we have some fun things coming up too. The weekend after next we are going to spend with my brother and his family, they are in Alabama about 2 1/2 hours away. Then in October we have tickets for the race in Charlotte. My favorite driver Dale Jr. is in the Chase this year ... GO #88!!!!!! The big thing we're trying to do this fall is to go see Garth Brooks in Las Vegas in November. Tickets are $250 each, which is a LOT of money, plus flying to Vegas, but Brian is trying to use his contacts in the music industry and see what he can get. It would be so AWESOME to see Garth again after so long. He is still my favorite of all time! I actually got to mee him in your state of TX, and I will tell you that story some time. We named our son Garth after him.

Love, Amy

At 1:39pm on September 8, 2011, Amy Robinson said…

Susan,

I am so sorry to hear about your fall and hope you're back up on your feet now. It scares me to hear about things like this. It doesn't happen very often, thank God, but I do manage to fall from time to time and I have been very lucky not to sustain any serious injuries. I realize how hard my good leg has to work to compensate and I am always concerned and a little scared about losing any strength there. I know first hand how difficult that can be. Near the end of my pregnancy, I lost feeling in my good leg from pressure on the nerve. Once my son was born the feeling quickly came back, but I had a lot of weakness in my good leg and had to do physical therapy to get back walking again.

Lately I have been feeling pretty good, only mild back pain and not even every day. I feel very blessed. Later this month I start traveling again on my job. I am not looking forward to it. It's so nice working from home and spending time with my husband and son. Garth is enjoying school this year, he is in a small school so he is with basically the same set of friends he has known. When I am not traveling I try and go to the school one day a week and volunteer for whatever they need me to do. It's good for me to be of service to the Lord in this way, and I think it helps the children to see someone with a disability "in action". When I first started coming in I could see some of the children didn't quite know what to make of me, some of them even a bit scared of my very obvious disability and deformity - but now I'm just "Mrs. Robinson" or "Garth's mom" and they are completely matter-of-fact about everything.

 

 
 
 

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