april iturria
  • Female
  • Susanville, CA
  • United States
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April iturria's Friends

  • Susan Jean Mauro-Bemme
  • Ted Granger
  • Gladys Swensrud

april iturria's Discussions

coping with progression and no remissions lately
6 Replies

my lungs are now at 70%, just got on BiPap instead of CPap...legs are deterioating more every 2-4 weeks...so much deterioation in the last 20 months.  is it usual to go downhill this fast....my mind…Continue

Started this discussion. Last reply by Susan Jean Mauro-Bemme Sep 26, 2012.

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Profile Information

Are you a Polio Survivor?
yes
What year did you contract polio?
1952
Do you have Post-Polio Syndrome?
yes
When did you begin experiencing symptoms?
2007
List any assistive devices you are using...
Bipap with oxygen lead in...20-30 liters, round the clock oxygen now, walker with seat
Please describe how polio has changed your life.
I am in shock how fast it has progress in just the last 18 months...praying for a remission..knowing a wheelchair will totally change my lifestyle, home repairs, ramps, etc. any encouragement, tips would be appreciated.
How did you find out about PolioToday.org?
read Richard Daggetts autobiography..Just Polio

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At 12:27pm on September 28, 2012, Susan Jean Mauro-Bemme said…

How are you doing April?

At 6:24am on June 14, 2012, Ted Granger said…

Welcome to Polio Today - PPS is just like theoriginal.  It treats no one the same.  I hope your able to find methods to alleviate your stress.

At 12:34pm on June 7, 2012, Gladys Swensrud said…

Hi April,

Since you have concerns about hooking up to oxygen, I hope you will watch the entire series of three, Breathing & Sleep symposia videos at PolioToday.org:  http://poliotoday.org/?page_id=761.  You can begin with the B&S/2009, but I think that B&S/2010 and 2011 will be extremely valuable for you to discuss with your pulmonary care physician.

Please let me know if there is any way in which I can help.  I accepted your friend invitation, so it is possible for you to contact me through "Send a Message."  It will be a one on one communication.

Good luck as you tackle this new challenge!

Gladys

 
 
 

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