Thomas J. Carlson
  • Male
  • Fountain Hills, AZ
  • United States
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Are you a Polio Survivor?
What year did you contract polio?
Do you have Post-Polio Syndrome?
When did you begin experiencing symptoms?
List any assistive devices you are using...
Home made orthotics, multiple layers of carpet pads in shoes.
List any Polio Survivor Groups that you belong to online or in person.
Polio Epic, Tucson AZ
Please describe how polio has changed your life.
It sucks. Morphine pain, feet, calves, buttocks, back, shoulders, neck, headaches, chest pains, bowel and bladder problems. Retired on disability 1985, age40. Memory and organizational problems as well as paranoia and hallucinations. Recently discovered that a host of other "problems, pain were caused be lime disease cousins protomyxzoa rheumatica and glomus versiform. Dr. Stephen Fry, Greenway-Hayden loop, Scottsdale AZ.
It hurts to stand, sit, or lie down. forgetting is constant, but gets worse with fatigue that feels like y face is sliding down.
Married 41 yrs, 4 wonderful grown daughters, 5 grandkids, it was a struggle to be a "not angry Father". Active in church, I chose not to give time to support group, but gave money.
US Army Reserve, 1967 til 1973 was horrible, with 16 weeks basic infantry training. Lots of booze for pain.
Survivd a gazillion Drs and basically self diagnosed and gave input to drs who understood reading material such as Dr. Bruno's. I've always tried to tell all and get understanding from friends, but fight the poster child images with leg braces etc and I look quite normal and have often told drs that I wish Ihab a bent leg or something. Seriously, i have several times inquired about having both feet amputated, but told that phantompain would remain.
I can't remember what it's like to feel good anymore. My VPAP doesn't control my complex sleep apnea anymore after 12 years of therapy with numerous changes.
I have social problems with my pain and fatigue and often cause embarrassment with inappropriate things I say. I was hospitalized a couple months ago for saying crazy things in my dr's office. I'm paranoid that I'm being watched and recorded. MRIs show white matter and other old infarcts. My family is afraid to leave me home alone. At their urging, I quit driving years ago.
Though this sounds like a Country and Western record, I'm still in love with my family and my Christian faith.
These illnessed have taken me some horrific places and I have suffered much, as have all Polios. Still I have much joy shining throuth and my sense of humor is still alive. This beautiful World with all its wonders encourages me constantly . The surviving Polio groups and folks like Dr. Bruno give glad encouragement.
How did you find out about
internet. I had about given up looking for such a current organization. I'm glad I stumbled upon your group.

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