Susan Jean Mauro-Bemme
  • 71, Female
  • New Port Richey, FL
  • United States
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Susan Jean Mauro-Bemme's Friends

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  • ari colatti
  • Margaret  DeBacker  Dieguez
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  • Ted Granger
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Susan Jean Mauro-Bemme's Discussions

Is anyone using Gaberpentin for the nerve pain?
24 Replies

I have been using this drug for over three years now. The strength has been increased recently and it seems to be helping quite a bit with the tingling and the "on fire" feeling. I haven't seen it…Continue

Started this discussion. Last reply by shari Johnston Jan 7, 2014.

Does your family and friend understand?
4 Replies

I've been in this PPS since 1994.......I'm coping.  Just wondering how anyone else's family and friends are doing with your diagnosis.  I"m finding through the years that "they" are not understanding…Continue

Started this discussion. Last reply by Mark Steinfort Nov 15, 2013.

Has anyone been in remission with PPS
4 Replies

I began having PPS symptoms in 94 and was diagnosed with it in 1996.  After a 5 year struggle...it won, I slowed way down, as we all know I had no choice but to wave the white flag.  As I look back…Continue

Started this discussion. Last reply by Susan Jean Mauro-Bemme Sep 25, 2012.

I've just found out that my spine needs to be reconstructed-help anyone.....
2 Replies

While madly searching for an alternative to surgery I once again began to ask why and came across PolioToday.org. It is the first time I have heard anyone say "I had Polio and I have PPS" and that…Continue

Started this discussion. Last reply by Susan Jean Mauro-Bemme Aug 13, 2012.

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Susan Jean Mauro-Bemme's Page

Profile Information

Are you a Polio Survivor?
yes
What year did you contract polio?
1952
Do you have Post-Polio Syndrome?
yes
When did you begin experiencing symptoms?
1994
List any assistive devices you are using...
back bracing, walker, motorized wheelchair
List any Polio Survivor Groups that you belong to online or in person.
none
Please describe how polio has changed your life.
incredibly
How did you find out about PolioToday.org?
internet

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Comment Wall (8 comments)

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At 5:38pm on October 6, 2012, Cindy Vaughn said…

Hi Susan,

I set up an appointment at the Houston Pos-Polio clinic in November.  I am very excited to find a doctor that can help me.  Have you been to a post-polio clinic?

 

At 5:13pm on October 1, 2012, Cindy Vaughn said…

Hi Susan,

Thank you for the welcome.  It is nice to find a community to discuss PPS.  In Shreveport, LA I am having a hard time finding a doctor that knows anything about polio or PPS.  I made an appointment with the Post-Polio Clinic in Houston, TX to have an evaluation.  Is it easy for you to find a doctor.  Also, I did have an MRI of my lower spine and have 2 discs that are collapsed and the lower spine is curving.

At 1:31pm on September 29, 2012, april iturria said…

Susan, just left you a long note....did you get it? Sat, 1:30pm,at library, Calif time. april

At 11:14am on September 2, 2012, Arlene Scott-Halpen said…

Hi Susan: Slow at looking at emails. On Sept 2 am trying to clean up emails. I see on 26 of august you gave me a reply to my email on the 22  thanks yes i would love to share our stories of you and me.Well i wanted to touch base with you. Back to my old emails to clear off  Regards Arlene

At 12:33pm on August 28, 2012, ROSA LILIANA ALMIRON said…
Hi Susan, I use google translator, sorry if not read very well. My name is Rosa Liliana Almiron (Yuly). I am President of the Asociacion Argentina Postpolio Polio.
In 2008 came to my country, Betty VanGieson and we could meet and knew,
I know she is no longer among us but I believe she is looking at us from above.
o en lugar de I believe, I am sure.
I am planning on going to California in December and I would be very pleased to have the opportunity to meet you

i look forward to hearing for you soon
your sincerely
At 1:44pm on August 26, 2012, Linda P. said…

Thank you.  I've been a part of the post polio network (limited part) for sometime.  I have been seeing Dr. Ryan in Warren for a number of years but have not really gotten involved or connected with others within the network.  It just felt like it was time.

At 8:19pm on August 22, 2012, Arlene Scott-Halpen said…

Hi Susan Today i got your EMail I live in up state NY I would like to start a supportgroup but I don't know how to start. I would like to  be friends with you I am curious as how did you come down with polio and how are you doing with PPS? and how did it effect you? Hon it is 11:25pm Better cut this short My email is  ahalpen@twcny.rr.com   Arlene Scott-Halpen   august 26 1939 this Sunday i will be 73  I have had polio over 50 years now

 

At 8:23am on August 18, 2012, Ted Granger said…

Welcome to Polio Today - glad you found the site and may it be very helpful to you.

 
 
 

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