Judy Humphreys
  • Winder, GA
  • United States
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Judy Humphreys's Discussions

Looking for support group meetings on Post Polio Syndrome
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I would be forever grateful to anyone who is aware of a post polio syndrome support group in the Metro Atlanta area. I think the only way I am going to be able to go on from here is to find a good…Continue

Started this discussion. Last reply by Gladys Swensrud Dec 9, 2009.

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Profile Information

Are you a Polio Survivor?
yes
What year did you contract polio?
1954
Do you have Post-Polio Syndrome?
YES!
When did you begin experiencing symptoms?
In my mid to late 40's
List any assistive devices you are using...
scooter, grabber, tub support handle, non slip bath mat. Sometimes I use a small bench inside the tub to make it eaiser to get in & out.
List any Polio Survivor Groups that you belong to online or in person.
I do not belong to any groups but rely on this wonderful site to find information. I have shared information with many different people on this site and made a wonderful new friend.
I also found a great doctor who has been a tremendous help in getting me a new scooter, better, more effective pain medication, updated information on pps and experienced therapists. Love Dr. Strasser!!!
Please describe how polio has changed your life.
I got Polio when I was 4, in 1954. I wore a brace till 7th grade then walked with a slight limp. I married, had 3 amazing children, worked several jobs then read about post polio in 1983. I attended Penn State 1984-1988, graduated w/ a B.S. in Rehab ED. Worked next 20 years w/ kids w/ special needs, owned my own company & was Statewide Assistive Technology Specialist. Slowly PPs took over, weakening my body & ended my career and what I thought was my life but I have come to realize I need to redefine myself. And that is what I am doing. There is life after PPS, you just have to be creative!
How did you find out about PolioToday.org?
Polio Today.org found me on Twitter

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At 2:29am on September 7, 2011, paula j tucker said…
hi judy, i have a daughter that lives in auburn, ga, i bet she has seen you somewhere in winder or auburn in a store or bank or something, i would love to talk to you about polio or even see you in person when i am at her house, or your house some time. paula tucker ( aka jackie )
At 6:45pm on August 5, 2010, Janice Cootey said…
I was looking at all the photos our Polio community have put up. Your waterfall caught my eye. Ooh, it's gorgeous. Is the waterfall in your back yard ? It looks so cool and inviting.
At 4:20pm on May 18, 2010, Ann Hazard said…
Hey Judy,

I haven't heard from you in a while ... not since you went to the clinic. So I have been thinking about you and hoping you are OK. I went to Ocala this weekend to a PPS symposium and learned a lot of good stuff. Gave me a bit of hope for the first time. Would love to hear from you. Hugs, Ann
At 1:16pm on May 12, 2010, Shari Fiksdal said…
Hi Judy,
I am so glad you were able to finally let go and get to a good doctor. I just found this message and apologize for not responding sooner! Do let me know how your appointment goes. I am so glad I could be of some help. Hugs, Shari
At 6:55am on May 4, 2010, Ann Hazard said…
Judy, I am trying to befriend you on here but haven't heard back. Here is a link that could be very helpful to you and your upcoming doctor appointment: http://www.ppsmanager.com/PPSM_2010/PPSM_05-10.html#brief It basically explains what will happen if you are seeing a neurologist. Please write me!

Ann
At 8:25am on March 26, 2010, Amy Gonzales said…
Judy,

Yes I truly love this site. I get to meet great people who understands what we are all going through. That's what really gets me is that I'm so young to be going through this PPS. My situation is a bit difficult because my doctor really thinks that it's an industrial injury that is really getting to me but there might be a hint of the PPS that is starting to show too. My doctor is trying to get a nerve test done so she can get a better understanding on what diagnoses she's going to give me with my situation. You see I got polio when I was 18 mo. old and I actually started working when I was 16. So I've been in the workforce for 20+ years. I will keep you posted. Take care Amy
At 11:55am on March 19, 2010, Amy Gonzales said…
Hi Judy--- Read your profile and I agree with the depression battle side. I too am battling depression but I try to move on. I have faith that God has something better for me to do with what we have PPS. I too needed to find a support group because it seems like normal people like some of my family members think that I'm just a lazy person. I am not a lazy person. I was like you multi tasking at work and home too. I too have sort of forgot GOD but I know that he is always with me guiding and leading me in the right direction even when I doubt him. I know he is always watching me. I just have really accept that he has put me in this situation to make me stronger in the end.
At 5:02pm on March 15, 2010, Janet Williams said…
Hi Judy- Isn't it wonderful to have such caring people.. I have not joined a support group.. Not sure if I could make it. We do sound like we have alot in common. Polio Friends saved my life and I mean that.. So keep posting when you can or even reading.. I have been on my computer more in this last week than a long time..

When we first thought I had PPS and was on with my friends before my dx, I spent nights on the computer.. So much help and compassion.. Hugs janet
At 12:21pm on March 14, 2010, Janet Williams said…
Dear Judy- I was just reading what you had posted on your bio.. I have felt so much as you. I can't do even half of what I used to do.. I have have been treated for depression, panic attacks and agrophobia.. I sometimes shun myself away from old friends, family- at times would like to just shut off the world..

But what keeps me going is knowing others that are like me. I take care of my very sick husband but that too has gotten me to where we need more help. We live in our own home in the country and would like to remain here. I hope through this site your can get help and others. No one has to be alone.. Hugs Janet
PS: It can be a journey into frustration...
At 10:06pm on December 5, 2009, Shari Fiksdal said…
Hi Judy,
This is Shari Fiksdal from IPPSO and in answer to your question there is a support group in Atlanta as well as a clinic! By the way welcome to Polio Today!

http://www.rehabmed.emory.edu/ This is the Clinic in Atlanta.

http://www.atlantapostpolio.com/ And this is the local support group. I do know Linda Priest by name but do remember meeting her. If you just says Shari from IPPSO referred you think Linda will recognize my name, I think she is still an IPPSO member....... Also if you want a place to post on line you can join the IPPSO main group and www.ippso-world.org and click on chat room and become a member where you can talk to others daily.

Let us know what we can do to help you.

Shari Fiksdal, Co-Founder & V. President
IPPSO
 
 
 

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