Janet Williams
  • Female
  • LeRoy New York
  • United States
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Janet Williams's Friends

  • Dennis B, Payne
  • Millie Malone Lill
  • Kay Taylor
  • Patricia Poitinger
  • linda taylor
  • Akano Taiwo
  • Peggy Bran
  • Lora Duguay
  • Bill Estes
  • Ann Dwyer
  • Michael O'Malley
  • Beverly Buccellato
  • Lee Kim Leng
  • Dolores Sieg
  • Michael Kossove

Janet Williams's Discussions

Still kickin'

Hi y'all!!!  My name is Janet and it has been a long time since I been here..  Short but cute story - I have had PPS or had been dx'd since 2007 - I am now 58, lost my hubby almost 3 years ago.  I…Continue

Started Apr 1, 2014

Branson Goers

Hi again, I was just wondering if any of you attend the Bransongoers /reunion that goes on every year?  It is located in Branson MO. I will be attending this year and really am excited to meet other…Continue

Started Feb 17, 2012

Getting Started with a Board?

Was just wondering if there is any of you that would be interested in getting a group started that live around WNY(Western New York)  - seems so many live in CA. - if so contact me at your…Continue

Started Feb 17, 2012

Question on Vehicles to Drive?

I was just wondering what type of vehicle some of you may drive without getting into mega bucks.  Right now I can still walk some with braces and crutches.  I also am finding the need to use my PC…Continue

Started Nov 16, 2011

 

Janet Williams's Page

Profile Information

Are you a Polio Survivor?
yes
What year did you contract polio?
1960
Do you have Post-Polio Syndrome?
Yes
When did you begin experiencing symptoms?
I would say in my 30's
List any assistive devices you are using...
braces, crutches and Power Chair
List any Polio Survivor Groups that you belong to online or in person.
Polio Friends, PPBG
Please describe how polio has changed your life.
The challeges you face- everyday. Finding different ways to do what people take for granted probably each day. Listening to your body that was something that I always would blow off as nothing.

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Comment Wall (19 comments)

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At 6:26am on October 9, 2011, Akano Taiwo said…
Hi Janet how are you doing.
At 7:22pm on March 27, 2011, Dennis B, Payne said…

Say Hello Janet, Yes, I am the Same Way - When it Come's To Writing E-Mail's Back and I Have It Hard - I Can Not Spell and It Take's a Bit For Me To Write, When I Do ? 

I Can Read Just Find, But When it Come's To Writing - My Brain Stop's Me - So I Need Some One To Help Me From Time To Time, With My Spelling and Yes, Are You Still Looking To Find Out More About Polio ? 

I Just Found This Web Site http://www.whale.to/vaccines/polio.html 

This Was Very Sad For Me and Made Me Very Mad To Find Out and If I Did Not Try and Meet With Ofter  Polio Survivors - I Would Not Have Started Looking Again and I Hope That The Info You Will Find On This Web Site Will Help You Out and I Do Hope We All Can Find What We Need Just To Get Our Pain's To Stop -  Say Janet, I am on Face-Book To and To All Polio Survivors - Do Look Me Up on Face-Book and Add Me as a Friend and I Will LOVE To Get As Many Polio Survivors To Come To Philly PA as I Can So We Can All Meet and Get To Find Out What We Are Being Told and Every Body With Polio, Should Follow The Link I Just Post Up ? 

Thank You Again Janet For Letting Me To Talk With You, 

Until Latter - Bye - Dennis....

At 12:53pm on March 25, 2011, Dennis B, Payne said…

Say Hello Janet and Thank You Very Much For Letting Me Know About Your Self and What You Now Have To Live With as a Polio Surivvor,  Yes, I Do Know What It is Like For You - I Have Been Living With Polio For Over 47 Year's Now and Yes, I Do This Day By Day And Every Day ? 

I Have Gotting Use-To It,  But Yes, Not To The Pain That Come's With It ?

The Pain I Do Feel, Well Some Time's It is Better To Do Not-a-Thing , But To Stay in Bed and Try To Sleep it a Way ? 

Then There is Time's - When I Can Not Do That,  I Have Ten Big Cat and They LOVE To Eat - A-Lot If I Let Them ? 

And I Only Get Some $$$'s From S.S.I. and So I Have To Go Out and Do Some Day Work and On Those's Day's When I Feel My Pain's Come-on ? 

I Have To Stop All That I am Doing and Go Back Home For the Rest of That Day, 

Just I Can Let My Body Do What it Need's To ...((^_^((?... and It Just Like This All the Time,

And To All Of My New Friend's With Polio, 

Please Do Feel Very Free To Say Hello Back - Any Time - This is All Very New To Me As For As Getting To Talk and Meet With All Ofter Polio Survivor's and am Trying To Put To-Gather a New Group of Friend's Who Have Polio or Know's Some-One With It ? 

We All Do Need To Talk With One Another Often as We All Can - And Oh Yes, I am Looking For ALL Polio Survivor's From 1962 and Right Up To When They Took The Drop's Out The Mark-it ? 

Some Time in The 90's ? 

The Youngist Polio Survivor is About - Not Sure of This Yet and I Do Want To Know Who This One Person or Can Be a Group of as Well ? 

Say Thank You Very Much Janet and I Do Hope That You Are Doing Good With PPS and Do Yes, Do Let Me Know Back How You Are Doing and if I Can Help in Any Way - Just Ask and Let's Try To Help One-Another To Do and To Feel Better and Until Latter, Bye - Dennis B Payne....

At 7:21pm on August 25, 2010, Millie Malone Lill said…
Thanks, Janet. I just wish I could meet all of my polio friends in person. I did meet quite a few while traveling all over the US and Canada for four years, and more through the various support groups and while speaking at conferences. Travel is not as easy as it used to be, so now I travel through cyberspace. I'm so glad to have you as a friend, Janet. Love you much.
At 7:56am on August 22, 2010, Linda Rowan said…
Thank you Janet! I love meeting new people and helping people who are dealing with PPS. I am just taking it "One Day at a Time"...Every day is a new adventure. Some better than others. Today is a "no go" day.
At 1:35pm on August 1, 2010, Stella Newall said…
Good morning Janet,
Polio survivors are I think a bit tougher than the average person, and we are used to thinking outside the square in order in order to get things done.
Love you too,
Stella
At 12:40pm on July 27, 2010, Stella Newall said…
Dear Janet, the photograph you commented on was taken by my daughter at the Ferry here, then she e-mailed it to me. I hope you can visualise yourself there, it's beautiful to look at, and very serene.
Adjusting to life with PPS is quite hard. I find that I grieve the loss of the ability to whizz around and get things done very fast now that I am in a power chair. So I use EFT and pray to deal with the frustration; since I might as well be happy in power chair rather than miserable.
hugs,
Stella
At 6:31am on July 14, 2010, Patricia Poitinger said…
Hi Janet, Thanks for the welcome!! So happy to meet you. I have been looking around and everyone seems so nice, happy and upbeat. I am looking forward to meeting more friends and learning more about PPS. I went to a Nuerologist last year who told me he doesn't believe in PPS. I had to laugh at that one. I told him he would believe in it if he had it. He is no longer my Doctor!!!!
At 11:45am on April 20, 2010, Mark Smith said…
Janet,

Thank you for the welcome. I haven't spent a lot of time on PT; just dicovered it yesterday, but think it is super.
When I was a kid, I remember seeing all of these people in the hospital in various stages of deformity. One young lady was in an iron lung. The whole scene really creeped me out. I vowed I would never live like "that."
I will be the first to admit that I have been incredibly blessed during my lifetime. I couldn't do the sports in school, run marathons, climb mountains, etc. But I rode my bike, played wiffle ball in the park, got decent at golf... and spent the next 38 years living a pretty darn good life. I still do take walks, ride some, garden, and all that, within limits. I've noticed over the past couple of years that my energy level has gone down and it takes me longer to bouncy back and began searching for answers. It NEVER occurred to me to chech our PPS as a possible reason for my issues.
And what I was reading and finding flashed me back to that hospital and really scared the crap out of me.
I've learned a lot the past couple of years. What used to be "use it or loose it" has now become "conserve it to preserve it."
I'm slowing down, taking it easy when doing things and not trying to strain or stead my system.
The issues are still with me and maybe always will be. I am so thankful for what I am able to do. The Lord has try and richly blessed me. My gratitude knows no bounds. I pray for those battling for peace, comfort and a breath of life. Blessings on you for your words of encouragement. PPS is ugly.
Mark
At 3:00pm on April 15, 2010, Bill Estes said…
Janet -

Thanks for your message. The weaker I get the more I think about polio. In fact, I almost obsess about it.

Bill Estes
 
 
 

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