"It is exceedingly common for folks with PPS to suffer muscle pain (and associated real muscle damage) when taking statins. Many of us cannot tolerate the drugs for that reason.
In my experience the two symptoms you may experience are specific…"
-
Gretchen Winchester
- Female
- Albuquerque, NM
- United States
- Blog Posts (1)
- Discussions (7)
- Events
- Groups
- Photos
- Photo Albums
Gretchen Winchester's Discussions
Lipitor
5 Replies
I have to start taking Lipitor for high cholesterol and the Dr. told me to watch for the side effects of muscle weakness, fatigue etc. I have that already with PPS. How would I know.Has anyone had…Continue
Started this discussion. Last reply by Dan Hicks Jul 6, 2016.
PPS getting worse with age?
4 Replies
After being diagnosed with PPS years ago,now in my 60"s I feel like I am getting morefatigued and weak. Does anyone else notice this or is it just me? Sometimes I feel a little down.Is there anything…Continue
Started this discussion. Last reply by Dan Hicks Aug 19, 2014.
PPS and Social Security Disability
I am a new member and have been reading post from others. I see a lot of survivors are worried about getting SSDI. They should not worry. The ruling for PPS and SSDI camedown in July 2, 2003. You DO…Continue
Started Jul 18, 2014
Gifts Received
Gretchen Winchester has not received any gifts yet
Gretchen Winchester's Page
Latest Activity
Gretchen Winchester replied to Gretchen Winchester's discussion Lipitor"I totally stopped taking the Lipitor and feel a whole lot better. My liver enzymes shot up way high so I am now trying to get them back down.
What a horrible drug. I have started taking CoQ10 to help. My cholesterol was never that bad to begin with."
Dan Hicks replied to Gretchen Winchester's discussion Lipitor"One final point: If you do decide to take a statin, you should strongly consider also taking a Coenzyme Q-10 supplement as well. This supplement significantly reduces the stress that the statin places on the muscles (though for me it…"
Dan Hicks replied to Gretchen Winchester's discussion Lipitor"Another symptom to watch for is "myoglobinuria", the appearance of a dark brown substance in your urine. This can make the urine cloudy or may rapidly settle out in the toilet bowl, looking like rust that settled out of the…"
Dan Hicks replied to Gretchen Winchester's discussion Lipitor"For folks with PPS, the odds of having significant side-effects from statins are quite high (I believe I once worked it out to be at least 20%). Unfortunately, if you have PPS it is hard to tell if statins are giving you side-effects, since…"
Gretchen Winchester replied to Dan Hicks's discussion Colorado "mystery illness""yes, I have been following. Pretty scary."
Dan Hicks replied to Gretchen Winchester's discussion PPS getting worse with age?"For about 10 years I found Strattera, an ADHD medication, to be exceedingly helpful with the fatigue and "brain fog". However, the side-effects of that drug (mainly numbness and dry mouth) were too severe, so after some trial and…"
Carolyn Mitchell replied to Gretchen Winchester's discussion PPS getting worse with age?"I was recently diagnosed with PPS and retired. I didn't have the energy to continue working. I accelerated in the fast lane physically; going from no assistance to multiple devices since Jan 2014. Being a survivor, like one survivor's…"
Dan Hicks replied to Gretchen Winchester's discussion PPS getting worse with age?"Definitely. The first signs of PPS hit me when I was in my early 50s, and it's been downhill since. I don't have the terrible fatigue I used to, thanks to Intuniv and some vitamins, but I get weaker every year. I used to…"
Gretchen Winchester posted a discussionPPS getting worse with age?
After being diagnosed with PPS years ago,now in my 60"s I feel like I am getting morefatigued and weak. Does anyone else notice this or is it just me? Sometimes I feel a little down.Is there anything to take for more energy?See More
Gretchen Winchester posted a discussionPPS and Social Security Disability
I am a new member and have been reading post from others. I see a lot of survivors are worried about getting SSDI. They should not worry. The ruling for PPS and SSDI camedown in July 2, 2003. You DO NOT need a lawyer to apply for SSDI. It is easy and you can do it on the phone. The people are so nice. Please go to the following web site and read theprocess. www.postpolioinfo.com/ssdisability2.phpThe article explains how to get…See More
Gretchen Winchester replied to Brenda Benavides's discussion Disability"There is no way to get turned down my SS. PPS is now a recognized disability with SS and has been been for a few years. I just called SS direct a few years ago and they could not have been more helpful. Did everything over the
phone and by mail. I…"
Gretchen Winchester replied to Mary Gerloff's discussion Pain Medication or Muscle Relaxers for Severe Muscle Spasms"My Internist has me take cyclobenzaprine 10mg. before bed. It is an anti-spasmatic.
G Winchester ( new member)"
Profile Information
- Are you a Polio Survivor?
- yes
- What year did you contract polio?
- 1949
- Do you have Post-Polio Syndrome?
- yes
- When did you begin experiencing symptoms?
- 15 years ago
- List any assistive devices you are using...
- leg brace and cane
- Please describe how polio has changed your life.
- unable to do activities I would like to do
- How did you find out about PolioToday.org?
- internet
Gretchen Winchester's Blog
Cannabus
Has anyone used marijuana for pain and sleep? News story on "Sunday Morning" today saying
seniors over 65 are finding great relief for arthritis pain and help with sleep.
Posted on May 1, 2016 at 7:22am
Comment Wall
- No comments yet!
Photos
Groups
-
Pennsylvania Polio Survi…
1 member
-
Riverside Area Polio Sur…
1 member
-
Spartanburg PPS Support…
1 member
-
San Diego North PPS Group
4 members
-
Silicon Valley Post Poli…
2 members
Spread the word about PolioToday.org
|
|
|
Post a flyer: You can let others know about PolioToday.org by downloading this flyer and posting it on a local bulletin board and/or bringing it to your local PPS support group. Invite your friends: You can easily send out email invitations to join PolioToday.org |
© 2017 Created by Salk Institute.
Powered by
