Was always pushed to do more in younger years .Called slow and picked on as the crippled kid . Did fairly well until about 17 and problems started showing up I was always misdiagnosed and mistreated .Married in 1977 and my wife has been my cheerleader and advocate as best she can in the medical field (no easy job) , has never given up on researching anything and everything that may benefit me . I have really physically gone down in the last few years physically ; was really over muscled over about half my body the polio I thought only took the right side from the diaphraghm down . I just would't understand that what my wife was telling me was associated with the polio . I have worked since the age of seventeen in a very physical field with lots of time constraints and the philosophy that if you want it done right do it yourself . You probably will never see a photo of me that shows the constant fatigue I felt . Yet due to my up-bringing I just could not keep from pushing myself to do more go further . My wife did her best to see that I got rest and was fed right but I have a very hard head . I always was at work but never took time to give myself or family a break . I just had no energy for a social life and became withdrawn from society and big family functions . I have a growing family of 2 sons and one daughter and 6 grand-children . They know their Dad & grand-Dad , usually when they first stat walking they want to emulate my limp .I am so thankful it is pretend to them and not what I went thru . As they grow older they want to learn about PPS and how they can help me . On the other hand when I was young and skilled in a bit of everything I was alwasys approached by family and friends because I was mostly home with no energy to do all the running they felt they needed to do that they were forever coming to me to fix this and fix that because I had plenty of time .That is still about the only time I hear from them now ; when they need or want something ,it is hard to say No. They even voted me and my wife to take in my disabled Father who is so much more needy than I believed myself to be . They are all off doing their thing : while we can't even leave home to visit our Children and Grand-kids . My wife is like me, it is not in her nature to say no and as well as caring for my Father who is very hard on her esp. when he depends on her for so much ; she also is the main caregiver for her Dad and Step-mother who have alzheimers and out of her 6 siblings she is the one everyone calls . I don't know just how to say it has changed my life for this is all I have known from the age of 18 months , Don't be deceived by the language of this writing , my wife knows me better than I do . She just knows how to put what I feel in words that I understand better when she writes them than when I think them. I know this has been long and is probably more words than I use in 6 months . Thanks for bearing with me; us .
I'm sorry it took me so long to accept your friend request. Seems like I am lucky if I can stop by PolioToday at least once every few months. With my job and dealing with the numerous post polio problems aggrevated by the aging process, I tend to have little energy left to visit this great site. We are very fortunate to have this place to come to. I hope all is well with you. -James-