I don't know how many guys are hanging around here, but here is something I learned a few months ago:Flomax (tamsulosin), commonly taken to alleviate urinary constriction due to enlarged prostate, et…Continue
I'm trying out Diphenhydramine (Benadryl, Sominex) to help my PPS fatigue, and it seems to be working. Crazy, I know, but taking 50 mg in the morning makes me LESS TIRED in the afternoon. I kind of…Continue
Has anyone here been diagnosed with "trigeminal neuralgia"? Over the past year or so I've been having more and more frequent/severe episodes of pain in my jaws, often accompanied by headaches and a…Continue
One recent discovery I've made is that I've apparently been deficient in the mineral magnesium for some time (possibly most of my life).It's kind of complicated how I came to suspect this, but a…Continue
Started this discussion. Last reply by Dan Hicks Mar 31, 2017.
"One thing to consider if you have leg cramps is your iron level. PPSers tend to have low iron levels, due to rhabdo, and this can cause "restless leg syndrome".
If you suspect this, though, first have your doc check your FERRITIN…"
"I have what is known as "face blindness" which I attribute to my polio (at age 2). This is difficulty recognizing people and connecting names with faces. Interestingly, it is also associated with difficulties with "map…"
"There are several possible causes of this, but a common one for PPSers is a sort of iron deficiency (resulting from the ongoing muscle damage we all deal with).
Have your doc test your FERRITIN level in your blood, and if it is low then take a…"
I don't know how many guys are hanging around here, but here is something I learned a few months ago:Flomax (tamsulosin), commonly taken to alleviate urinary constriction due to enlarged prostate, et al, causes some fairly significant side-effects. The most notable of these is nasal congestion. But there is another drug, alfuzosin, which is almost as effective as Flomax while causing very little (if any) nasal congestion.But more interesting still is the fact that when I began taking…See More
I'm trying out Diphenhydramine (Benadryl, Sominex) to help my PPS fatigue, and it seems to be working. Crazy, I know, but taking 50 mg in the morning makes me LESS TIRED in the afternoon. I kind of happened on this by accident, but a web search bears out that this drug is often prescribed for fatigue and related symptoms, and there is some sound theory behind it.(Understand that I'm NOT talking about taking the drug to improve sleep, but rather to directly improve alertness.)See More
"Don't know a lot about pacemakers (my heart is apparently one of the few things in my body working correctly), but I do know that a lot of factors can affect fatigue, muscle pain, etc. I have had times when I was so weak and fatigued I…"
"I had some issues with choking and gagging about 20 years back, but they were apparently due to an infection in the throat, and things cleared up on there own after a few weeks. (I have noticed my gag reflex in the dental chair is maybe a bit…"
Has anyone here been diagnosed with "trigeminal neuralgia"? Over the past year or so I've been having more and more frequent/severe episodes of pain in my jaws, often accompanied by headaches and a numb spot on my lip. This seems to be fairly typical of trigeminal neuralgia, but what I read on the web is kind of vague.And I vaguely recall that the condition is more common in PPSers.See More
"If statins are a problem for you (but you would still like to continue taking them) you can try taking a fairly high dose of CoQ-10 ("food supplement"). This actually worked briefly for me, though it seemed to lose effectiveness and…"
"About 15 years ago, on a different polio forum, I did a sort of informal "sampling" of folks there who reported pain that was consistent with their statin use. I forget the exact numbers, but it appeared that statin use was at least…"
"Also I'll note that I have for 10-15 years used a "wedge" pillow (I'm thinking it's a 7" one) to elevate my head and shoulders. This was originally for heartburn, and it's been so long I can't say what…"
"Yeah, I've had bad reactions (pain) to every cholesterol med I've tried. Mostly the pains have been in my shoulders, though.
Note that another condition that causes statin pain is MADD, a genetic muscle condition which causes the…"
"It's worth a try to get a "noodle" (the ones used in PT are like swimming noodles but a bit stiffer and covered with bumps -- but a swimming noodle would probably work).
You put the noodle on the floor, sit on it, then, rather…"