Dan Hicks
  • Byron, MN
  • United States
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Dan Hicks's Discussions

PPS and pancreatitis?

I'm wondering if anyone here has been diagnosed with pancreatitis -- a (usually chronic) inflammation of the pancreas.  Symptoms are pain, fatigue, progressive neuropathy, and several others.  (Sound…Continue

Tags: pancreas

Started Mar 25

Anyone else tried hydrochlorothiazide?

My endocrinologist prescribed hydrochlorothiazide (12.5 mg daily) to supposedly reduce my risk for kidney stones (which has been a problem over the years).But after I started taking the pills I found…Continue

Tags: hydrochlorothiazide, pain

Started Dec 14, 2018

For the guys: Flomax

I don't know how many guys are hanging around here, but here is something I learned a few months ago:Flomax (tamsulosin), commonly taken to alleviate urinary constriction due to enlarged prostate, et…Continue

Tags: flomax, prostate, urinary, drugs

Started Apr 28, 2018

Sleep aid for fatigue? It might actually work!

I'm trying out Diphenhydramine (Benadryl, Sominex) to help my PPS fatigue, and it seems to be working.  Crazy, I know, but taking 50 mg in the morning makes me LESS TIRED in the afternoon.  I kind of…Continue

Started Jan 4, 2018

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Dan Hicks posted a discussion

PPS and pancreatitis?

I'm wondering if anyone here has been diagnosed with pancreatitis -- a (usually chronic) inflammation of the pancreas.  Symptoms are pain, fatigue, progressive neuropathy, and several others.  (Sound familiar?)  Jaundice or diabetes may or may not be present.  And there is intriguing evidence that polio may sometimes be involved in the development and progression of the disease.  Yet I've never see any mention of pancreatitis as a possible cause of PPS symptoms.The most notable signs of…See More
Mar 25
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Dan Hicks posted a discussion

Anyone else tried hydrochlorothiazide?

My endocrinologist prescribed hydrochlorothiazide (12.5 mg daily) to supposedly reduce my risk for kidney stones (which has been a problem over the years).But after I started taking the pills I found that my pain level was rising.  At first I ignored it, since I have all sorts of reasons for pain (PPS, MADD, arthritis, the kidney stones, etc), but the pain got worse and worse.  It was kind of like the pain I had when I was on statins, but spread a bit more generally around my back and chest,…See More
Dec 14, 2018
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Dan Hicks replied to florence edelman's discussion Osteoporosis - Loss of Bone Density
"I'm not as disabled as many of you, and I have always been reasonably active.  As of blood tests and X-rays about 4 months ago I do not have osteoporosis.  I have apparently inherited my grandfather's hunch, though."
Sep 29, 2018
Dan Hicks replied to Gretchen Winchester's discussion Increased fatigue
"One thing to add:  A few months back I switched from Flomax (for urinary difficulties) to Alfuzosin, mostly because the Flomax causes rhinitis (runny nose).  When my head cleared up it strangely improved my fatigue situation quite a…"
Sep 16, 2018
Dan Hicks replied to Gretchen Winchester's discussion Increased fatigue
"I think we've all noticed increased fatigue.  Chronic fatigue syndrome (CFS) kind of comes with PPS.  I did, for a few years, benefit from taking the ADHD drug Strattera (prescribed by a psychiatrist), but the effect got weaker and…"
Sep 16, 2018
Dan Hicks replied to Gretchen Winchester's discussion Night time leg cramps
"One thing to consider if you have leg cramps is your iron level.  PPSers tend to have low iron levels, due to rhabdo, and this can cause "restless leg syndrome". If you suspect this, though, first have your doc check your FERRITIN…"
Aug 15, 2018
Dan Hicks replied to Larry Kueneman's discussion Two bothersome conditions, probably polio related
"I have what is known as "face blindness" which I attribute to my polio (at age 2).  This is difficulty recognizing people and connecting names with faces.  Interestingly, it is also associated with difficulties with "map…"
Jul 22, 2018
Dan Hicks replied to Gretchen Winchester's discussion Night time leg cramps
"There are several possible causes of this, but a common one for PPSers is a sort of iron deficiency (resulting from the ongoing muscle damage we all deal with).  Have your doc test your FERRITIN level in your blood, and if it is low then take a…"
Jul 22, 2018
Dan Hicks posted a discussion

For the guys: Flomax

I don't know how many guys are hanging around here, but here is something I learned a few months ago:Flomax (tamsulosin), commonly taken to alleviate urinary constriction due to enlarged prostate, et al, causes some fairly significant side-effects.  The most notable of these is nasal congestion.  But there is another drug, alfuzosin, which is almost as effective as Flomax while causing very little (if any) nasal congestion.But more interesting still is the fact that when I began taking…See More
Apr 28, 2018
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Dan Hicks replied to Gretchen Winchester's discussion CBD oil and Tumeric
"Interesting -- I might actually try it!"
Apr 28, 2018
Dan Hicks posted a discussion

Sleep aid for fatigue? It might actually work!

I'm trying out Diphenhydramine (Benadryl, Sominex) to help my PPS fatigue, and it seems to be working.  Crazy, I know, but taking 50 mg in the morning makes me LESS TIRED in the afternoon.  I kind of happened on this by accident, but a web search bears out that this drug is often prescribed for fatigue and related symptoms, and there is some sound theory behind it.(Understand that I'm NOT talking about taking the drug to improve sleep, but rather to directly improve alertness.)See More
Jan 4, 2018
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Dan Hicks replied to Bill N's discussion Pacemaker and PPS
"Don't know a lot about pacemakers (my heart is apparently one of the few things in my body working correctly), but I do know that a lot of factors can affect fatigue, muscle pain, etc.  I have had times when I was so weak and fatigued I…"
Dec 7, 2017
Dan Hicks replied to joseph m gifford's discussion strong gag reflex
"Has a doc (preferably an ENT or other specialist) looked down your throat?"
Sep 22, 2017
Dan Hicks replied to joseph m gifford's discussion strong gag reflex
"I had some issues with choking and gagging about 20 years back, but they were apparently due to an infection in the throat, and things cleared up on there own after a few weeks.  (I have noticed my gag reflex in the dental chair is maybe a bit…"
Sep 21, 2017
Dan Hicks posted a discussion

trigeminal neuralgia

Has anyone here been diagnosed with "trigeminal neuralgia"?  Over the past year or so I've been having more and more frequent/severe episodes of pain in my jaws, often accompanied by headaches and a numb spot on my lip.  This seems to be fairly typical of trigeminal neuralgia, but what I read on the web is kind of vague.And I vaguely recall that the condition is more common in PPSers.See More
Aug 21, 2017
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Dan Hicks replied to joseph m gifford's discussion leg and foot pain
"If statins are a problem for you (but you would still like to continue taking them) you can try taking a fairly high dose of CoQ-10 ("food supplement").  This actually worked briefly for me, though it seemed to lose effectiveness and…"
Jul 20, 2017

Profile Information

Are you a Polio Survivor?
yes
What year did you contract polio?
1951
Do you have Post-Polio Syndrome?
Yes
Please describe how polio has changed your life.
How hasn't it? Always "passed" but never could run, jump. PPS fatigue is a killer.

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