Dan Hicks
  • Byron, MN
  • United States
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Dan Hicks's Discussions

Cold feet
1 Reply

Wondering if anyone else has this problem?It comes and goes.  I'll be fine and then 15 minutes later I have cold feet.  The sensation will last several hours and then go away.  Tends to be…Continue

Started this discussion. Last reply by Cheryl Stanton Mar 14.

Aspartame
2 Replies

Has anyone else noticed a sensitivity to aspartame, the artificial sweetener in Diet Coke and most other diet pops?I have had problems with kidney stones for years, and finally was getting them under…Continue

Tags: aspartame, urinary, stones, kidney, Pain

Started this discussion. Last reply by Dan Hicks Feb 28.

Multiple Sclerosis

Has anyone out there been so "fortunate" as to get MS on top of their post-polio symptoms?  I recall reading way back when that some "experts" felt that MS was a bit more common in PPS folks than in…Continue

Started Jun 30, 2016

Muscle cramps/spasms?
4 Replies

I am getting some VERY SEVERE muscle spasms in my right hip.  This is of the sudden "electric shock" variety, only these are more like electrocution -- when one hits I almost fall down, and one could…Continue

Started this discussion. Last reply by Dan Hicks Jan 7, 2016.

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Latest Activity

Cheryl Stanton replied to Dan Hicks's discussion Cold feet
"I do get cold feet especially in the cold weather.  Husband tells me My feet are cold but i can't tell unless it's really cold out and them they tingle, but then my legs have sensation all day but not like your symptoms."
Mar 14
Dan Hicks posted a discussion

Cold feet

Wondering if anyone else has this problem?It comes and goes.  I'll be fine and then 15 minutes later I have cold feet.  The sensation will last several hours and then go away.  Tends to be predictable in the sort term -- will have cold feet at 2PM daily for several days, then it will switch to a different time.  Doesn't seem to be dependent on where I am, in the house or in a store or whatever.  And when it's at its worst I have trouble concentrating and "motivating".Back a couple of years…See More
Mar 12
Dan Hicks replied to Dan Hicks's discussion Aspartame
"Update:  After several months off off aspartame, the improvement in my urinary symptoms is dramatic.  Frequency is approaching "normal", and urgency issues are greatly reduced.  My overall health seems to be somewhat…"
Feb 28
Dan Hicks replied to Barbara York's discussion eye muscle damage?
"One thing that occurs to me is that "myoadenylate deaminase deficiency" could lead to this pain (and associated eye muscle damage).  It's a "metabolic disorder" (usually genetic) that occurs in about 5% of the…"
Nov 20, 2016
Cheryl Stanton replied to Dan Hicks's discussion Aspartame
"Hi, I have always been a eating organic kind of girl and for decades I haven't used aspartame or anything artificial.  I personally think that's why my PPS didn't manifest for decades. Fast forward, for 10 years now PPS has taken…"
Nov 10, 2016
Dan Hicks posted a discussion

Aspartame

Has anyone else noticed a sensitivity to aspartame, the artificial sweetener in Diet Coke and most other diet pops?I have had problems with kidney stones for years, and finally was getting them under controls with D-ribose and potassium citrate, but was still having serious problems with urinary urgency/frequency.  So, on a hunch I cut out aspartame, and the urinary symptoms improved significantly within a couple of days.  After several weeks I'm not quite "normal" in this department, but can…See More
Nov 10, 2016
Dan Hicks left a comment for Victor Pintado
"Welcome!  Sad to say that traffic here has really fallen off (by about a factor of ten) in the past year or two, but there are a few loyal souls about.  Please "Add a discussion" on the "Forum" to introduce yourself!"
Oct 14, 2016
Dan Hicks replied to Dolores Sieg's discussion I promised I would let you know how my experiment turned out
"Not even Dolores is legit.  She was a marketer in an MLM scheme."
Sep 24, 2016
Dan Hicks replied to Gretchen Winchester's discussion Lipitor
"It is exceedingly common for folks with PPS to suffer muscle pain (and associated real muscle damage) when taking statins.  Many of us cannot tolerate the drugs for that reason. In my experience the two symptoms you may experience are specific…"
Jul 6, 2016
Dan Hicks posted a discussion

Multiple Sclerosis

Has anyone out there been so "fortunate" as to get MS on top of their post-polio symptoms?  I recall reading way back when that some "experts" felt that MS was a bit more common in PPS folks than in the general population.I've got a couple of symptoms that are more suggestive of MS than PPS (and, of course, the vast majority of symptoms overlap the two disorders).See More
Jun 30, 2016
Dan Hicks replied to susan fuentez's discussion Low dopamine levels
"I've never seen anything specifically regarding dopamine.  (I read Bruno's book many years back but don't recall what he may have said there.) PPSers generally have Chronic Fatigue Syndrome symptoms to a varying degree, of…"
Apr 27, 2016
Dan Hicks replied to Gretchen Winchester's discussion Lipitor
"One final point:  If you do decide to take a statin, you should strongly consider also taking a Coenzyme Q-10 supplement as well.  This supplement significantly reduces the stress that the statin places on the muscles (though for me it…"
Apr 9, 2016
Dan Hicks replied to Gretchen Winchester's discussion Lipitor
"Another symptom to watch for is "myoglobinuria", the appearance of a dark brown substance in your urine.   This can make the urine cloudy or may rapidly settle out in the toilet bowl, looking like rust that settled out of the…"
Apr 5, 2016
Dan Hicks replied to Gretchen Winchester's discussion Lipitor
"For folks with PPS, the odds of having significant side-effects from statins are quite high (I believe I once worked it out to be at least 20%).  Unfortunately, if you have PPS it is hard to tell if statins are giving you side-effects, since…"
Apr 3, 2016
Dan Hicks replied to shari Johnston's discussion Sore neck musscles
"I've mentioned this before, but thought I should reiterate a tad -- I never new I'd had polio, and prior to discovering I did, I found out I have another disorder:  Myoadenylate Deaminase Deficiency (MADD).  This is an inherited…"
Mar 31, 2016
Dan Hicks replied to Margaret G Carson's discussion Relaxing with beer
"I'll add that something that seemed to help a little was chamomile tea.  It was by no means a panacea, but it seemed to take the edge off the spasms a bit and make it a little easier to relax."
Feb 15, 2016

Profile Information

Are you a Polio Survivor?
yes
What year did you contract polio?
1951
Do you have Post-Polio Syndrome?
Yes
Please describe how polio has changed your life.
How hasn't it? Always "passed" but never could run, jump. PPS fatigue is a killer.

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