I'm trying out Diphenhydramine (Benadryl, Sominex) to help my PPS fatigue, and it seems to be working. Crazy, I know, but taking 50 mg in the morning makes me LESS TIRED in the afternoon. I kind of…Continue
Has anyone here been diagnosed with "trigeminal neuralgia"? Over the past year or so I've been having more and more frequent/severe episodes of pain in my jaws, often accompanied by headaches and a…Continue
One recent discovery I've made is that I've apparently been deficient in the mineral magnesium for some time (possibly most of my life).It's kind of complicated how I came to suspect this, but a…Continue
Started this discussion. Last reply by Dan Hicks Mar 31, 2017.
I'm trying out Diphenhydramine (Benadryl, Sominex) to help my PPS fatigue, and it seems to be working. Crazy, I know, but taking 50 mg in the morning makes me LESS TIRED in the afternoon. I kind of happened on this by accident, but a web search bears out that this drug is often prescribed for fatigue and related symptoms, and there is some sound theory behind it.(Understand that I'm NOT talking about taking the drug to improve sleep, but rather to directly improve alertness.)See More
"Don't know a lot about pacemakers (my heart is apparently one of the few things in my body working correctly), but I do know that a lot of factors can affect fatigue, muscle pain, etc. I have had times when I was so weak and fatigued I…"
"I had some issues with choking and gagging about 20 years back, but they were apparently due to an infection in the throat, and things cleared up on there own after a few weeks. (I have noticed my gag reflex in the dental chair is maybe a bit…"
Has anyone here been diagnosed with "trigeminal neuralgia"? Over the past year or so I've been having more and more frequent/severe episodes of pain in my jaws, often accompanied by headaches and a numb spot on my lip. This seems to be fairly typical of trigeminal neuralgia, but what I read on the web is kind of vague.And I vaguely recall that the condition is more common in PPSers.See More
"If statins are a problem for you (but you would still like to continue taking them) you can try taking a fairly high dose of CoQ-10 ("food supplement"). This actually worked briefly for me, though it seemed to lose effectiveness and…"
"About 15 years ago, on a different polio forum, I did a sort of informal "sampling" of folks there who reported pain that was consistent with their statin use. I forget the exact numbers, but it appeared that statin use was at least…"
"Also I'll note that I have for 10-15 years used a "wedge" pillow (I'm thinking it's a 7" one) to elevate my head and shoulders. This was originally for heartburn, and it's been so long I can't say what…"
"Yeah, I've had bad reactions (pain) to every cholesterol med I've tried. Mostly the pains have been in my shoulders, though.
Note that another condition that causes statin pain is MADD, a genetic muscle condition which causes the…"
"It's worth a try to get a "noodle" (the ones used in PT are like swimming noodles but a bit stiffer and covered with bumps -- but a swimming noodle would probably work).
You put the noodle on the floor, sit on it, then, rather…"
"I'll mention that to some degree your "shooting" leg pain is suggestive of piriformis syndrome, otherwise known as "false sciatica". Basically, this is a condition where the piriformis muscle in the butt goes into…"
"It's tough, I know. I've had an assortment of pains, with an assortment of causes. Some of the worst was a little over a year ago when I had shoulder surgery (due to a fall) and then, because I was sleeping on one side all the…"
"I'm taking magnesium oxide, 600mg if I recall correctly. I plan to switch to magnesium citrate soon -- I picked out the oxide before I thoroughly researched it.
It is kind of weird that docs rarely do tests for this condition (though I…"
"Hi Dan, I take magnesium glycinate and have for 8 yrs. for my afib and it has helped a whole lot to keep my episodes under control. I haven't noticed a difference for my post-polio which is getting worse each year. Which one are you taking if…"
One recent discovery I've made is that I've apparently been deficient in the mineral magnesium for some time (possibly most of my life).It's kind of complicated how I came to suspect this, but a couple of weeks ago I read some stuff that suggested it would be a possibility, so I went out and got a supplement & tried it. Within a couple of hours I felt more alert, and it seemed to help my urinary problems (the main reason I was looking) quite a bit. Then I discovered that I was walking…See More