Constance Sweeney
  • Female
  • Dubuque, IA
  • United States
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Constance Sweeney's Discussions

Prolia for Osteoporosis?

My osteopenia has progressed to osteoporosis.  My doctor wants me to go on Prolia (twice a year shots).  Has anyone had any experience with this?  I'm so afraid of the side effects!Continue

Started Apr 1, 2014

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Profile Information

Are you a Polio Survivor?
yes
What year did you contract polio?
1956
Do you have Post-Polio Syndrome?
Yes
When did you begin experiencing symptoms?
About 10 years ago
List any assistive devices you are using...
Brace on left leg, cane, scooter, bi-pap machine
List any Polio Survivor Groups that you belong to online or in person.
Local Tri-State PPS Support Group, Yahoo Group Post Polio Syndrome, IPPSP
Please describe how polio has changed your life.
This would take a long time and many words...
How did you find out about PolioToday.org?
A facebook page

Comment Wall (2 comments)

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At 2:12pm on January 26, 2010, Constance Sweeney said…
I started going to my pulmonary doctor when I was in my early 20s. I have one lung that was affected by my scoliosis--it is under developed and doesn't move much air. I wanted a baseline of what my 'normal' was so that if I had problems in the future, there was something to compare to. I have been seeing this same pulmonary doctor for 30 years. About 7-8 years ago, I began to have problems with breathing. I was waking up with headaches and my husband was concerned about how I breathed when in bed. After a sleep study, the doctor put me on oxygen at night I was on it for about two years when I got to the point that I couldn't hardly walk across our bedroom in the morning. I was very short of breath and was panicked that I would not be able to breath any more. I went to the trusty Internet and began searching. I printed off the information about Polio and breathing problems and went straight to him. He put me in the hospital overnight where they were supposed to get the settings adjusted on the bi-pap, however, they started it way to high. The doctor said it could have almost damaged my good lung! Anyway, it took several months to find just the right settings. It was especially difficult to get the backup rate adjusted because I take long slow breaths. I have had to up the volume setting once since I've been on it. It is definitely a life saver! My doctor admitted early on that he did not have any real knowledge of Post Polio and he had never seen a live case firsthand. He is, however, very receptive to anything I bring to him and he works with me to treat my problems. I have traveled to a Post Polio Clinic in St. Paul and saw a psychiatrist but they did not diagnose my breathing issues since I was under treatment for them. I have become my own advocate. I belong to several online PPS groups and look for current research on PPS so I am knowledgeable about what may be my best course of action. I know this is more than you wanted to know...
At 7:31pm on January 24, 2010, Nesrin Caglan said…
Hi Constance, please continue dancing..that sounds lovely to me, that is basically what we all have to do, make the best of what was given to us! It is not the end of the world, there is always somebody who is in a more difficult situation.

Always keep up the positive spirit, many hugs....Nesrin
 
 
 

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