Cindy Vaughn
  • Female
  • Ida, LA
  • United States
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  • Susan Jean Mauro-Bemme
  • Ted Granger

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Profile Information

Are you a Polio Survivor?
yes
What year did you contract polio?
1960
Do you have Post-Polio Syndrome?
Yes
When did you begin experiencing symptoms?
2002
Please describe how polio has changed your life.
I am facing a neck surgery for the second time because of a herniated disc. However, I am also having intense lower back pain and have not worked a full 40 hour week in 2-3 months
How did you find out about PolioToday.org?
searching websites

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At 6:18am on October 2, 2012, Ted Granger said…

Welcome to Polio Today - Good luck with the surgery

At 7:54pm on October 1, 2012, Susan Jean Mauro-Bemme said…

Hi Cindy...you'll find it difficult at best if not impossible to find a doctor who knows of either PPS or Polio depending on where you live.  When I first was diagnosed with PPS in 1996 I had gone through many many doctors, many, many tests and many, many wrong diagnosis. I lived in Florida at the time and was in the medical profession.

Don't give up, though it is exhausting I know.  Perhaps you should look at some of the forum discussion and check out the "my story" page of some of the individuals members pages at this site.  Also go to Facebook...Post Polio Syndrome.  When I was first diagnosed with PPS, it still was common not to talk about it.  To my knowledge there were no chat areas as there are now. It would have helped me greatly to just beable to talk or write to someone and to know I wasn't in this alone.

I want to discuss with you your back and I want you to carefully decide on surgeries.  Please check out Dr. Richard Bruno's website....remarkable man.Take care of yourself. Regards, Susan

P.S. I was told I needed complete reconstruction of my back two months ago by a spine specialist, which included  seven levels of my lower back and four of my cervical area much like you.  I've been to four specialist and I will be glad to discuss any of this with you.

At 10:15am on October 1, 2012, Susan Jean Mauro-Bemme said…

Welcome Cindy.  I hope you find this site as much benefit as I have.  I am facing exactly what you are.  In fact it seems that most of my spine needs "reconstruction" per my spine specialist. However, I am not ready to tackle this right now.  Still researching.  Have you had an MRI of your lower spine?  Jot me a note if you would like. Regards, Susan

 
 
 

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