Barbara York
  • Female
  • Lancaster, CA
  • United States
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  • Susan Jean Mauro-Bemme
  • Dan Hicks
  • Shari Fiksdal

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eye muscle damage?
17 Replies

Has anyone else encountered damage to eye muscles due to polio?  My eye doctor has seen this before in polios, but is, of course, in process of ruling out other causes.  However, there  appears to…Continue

Started this discussion. Last reply by Dan Hicks Nov 20, 2016.

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Dan Hicks replied to Barbara York's discussion eye muscle damage?
"One thing that occurs to me is that "myoadenylate deaminase deficiency" could lead to this pain (and associated eye muscle damage).  It's a "metabolic disorder" (usually genetic) that occurs in about 5% of the…"
Nov 20, 2016
Christine Peverill replied to Barbara York's discussion eye muscle damage?
"just saw this i had been going on for years with my doctor about polio causing my eye problems only to be more or less laughed at, only this year did a specialist in london examine and finally agree with me of the 6 eye muscles four of mine are…"
Nov 20, 2016
Barbara York replied to Barbara York's discussion eye muscle damage?
"My eyes have not progressed yet to where I need surgery, but I have difficulty reading much now."
Aug 30, 2014
Dan Hicks replied to Barbara York's discussion eye muscle damage?
"Prior to surgery one should always warn the doctors that PPSers are apt to be hypersensitive to anesthetics.  They should know this, of course, but they may not always connect the dots."
Aug 30, 2014
Amy Wu replied to Barbara York's discussion eye muscle damage?
"I have Polio when I was 13 months old. I was diagnostic with PPS when I am 34 years old. Now I am 46. Yes. I had this issue. My  eye muscle doesn't work well. I can’t move it the way I want it to be. I had an…"
Aug 28, 2014
Shari Fiksdal and Barbara York are now friends
Sep 3, 2013
Barbara York replied to Barbara York's discussion eye muscle damage?
" Eye MUSCLE pain is not unheard of.  My doctor has two PPS patients with it.  The pupil damage is not PPS.  I am very careful about eliminating all other reasonable diagnoses first, but I have been through painful, uncomfortable…"
May 29, 2013
Susan Jean Mauro-Bemme replied to Barbara York's discussion eye muscle damage?
"I believe your right Dan..........plus I've never heard of PPS eye pain.  We can't always blames all our health battles on Post Polio  I'm afraid if we do we might miss out on proper diagnosis."
May 28, 2013
Dan Hicks replied to Barbara York's discussion eye muscle damage?
"I presume you've been checked for cataracts.  They can cause eyestrain leading to pain."
May 25, 2013
Barbara York replied to Barbara York's discussion eye muscle damage?
"I hope you will let us know you are doing.  It really helps me to know there are others paddling in similar canoes."
May 24, 2013
susan fuentez replied to Barbara York's discussion eye muscle damage?
"hi Barbara, thank you for your concern. I am not having a double vision issue, but I do suffer from bright light pain, the sun, the tv, cell phones, and computer. . I sometimes have to wear shades in the house, to prevent the pain, or to…"
May 24, 2013
Barbara York replied to Robert Paul's discussion RAS and vision problem.
"My MRI with contrast dye revealed no abnormalities.  As always, if you can't find any other reasonable cause, it may be the PPS.  The blurry symptom is what I started with, before the vision became double, and is correctable if it is…"
May 24, 2013
Barbara York replied to Susan Jean Mauro-Bemme's discussion Is anyone using Gaberpentin for the nerve pain?
"HI Susan, I had used it for several years when the nerve pain was more acute.  I gradually decreased the dosage and went off  (I just take too many meds!).  I didn't have any increase in pain when I went off, and I didn't…"
May 24, 2013
Barbara York replied to Barbara York's discussion eye muscle damage?
"Dear Susan, I am sorry you have the similar problem, but I am happy that sharing information has helped you.  Here's what has helped me:  I use blended lenses for most tasks.  In order to help my eyes from straining to use the…"
May 24, 2013
susan fuentez replied to Barbara York's discussion eye muscle damage?
"Hi my name is susan, I too am a polio survivor, i got polio when i was 2 mths old. Which left my right leg severly weakend. I was diagnosed with pps at the age of 38. My body in the past few yrs has became weaker and more limited. Reading your post…"
May 24, 2013
Susan Jean Mauro-Bemme left a comment for Barbara York
"I'm here for you Barbara"
May 2, 2013

Profile Information

Are you a Polio Survivor?
yes
What year did you contract polio?
1954
Do you have Post-Polio Syndrome?
yes
When did you begin experiencing symptoms?
2000
List any assistive devices you are using...
scooter, uriniary catheters
Please describe how polio has changed your life.
Disabled; had to quit my job. The whole issue of not being able to work has created financial difficulties. Now I feel that pieces of me are falling apart more and more. Less mobility, neurogenic bladder, double vision caused by weakened eye muscles, a slight swallowing problem, weakness in my dominant hand...and others have it worse!
How did you find out about PolioToday.org?
surfing the net

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At 5:29am on May 2, 2013, Susan Jean Mauro-Bemme said…

I'm here for you Barbara

 
 
 

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