List any Polio Survivor Groups that you belong to online or in person.
Please describe how polio has changed your life.
I was 19 married 2 years Husband was in Air Force just had returned after 1 year of active duty in AFRICA. I really lost my balance and most of the time i would fall & yes I would break my bad leg a lot up to this date I have broken my left leg 31 times since 1960 Twice my femur that hurt
How did you find out about PolioToday.org?
Surfing the web
Comment Wall (4 comments)
You need to be a member of Polio Today to add comments!
like you when "things" started happening in 1994 I was frantic. After a fall, breaking my "good" ankle I began having sever fatigue and muscle loss. It took until July of 1996 to get a diagnosis of PPS, which I had never heard of.
I was braced pretty much from head to toe. I was wheel chaired. I became divorced and no longer had my career. To put it gently I was a real mess.
I don't know if I slowed down from choice or just couldn't fight it any longer.
I will tell you it did go into a "remission" of sorts for about 16 years. I no longer needed assitive devices and used my chair ocassionally until a few months ago. It's raising its ugly little head again and I'm having a lot of fatigue mid day and find that the wheel chair when shopping comes in handy. I am having a lot of medical problems which I will be putting in some kind of forum manner soon so that I can see if anyone else is now having these issues. I hope that this has helped you. Any questions or just to "talk" please write.
I'm not sure I know how I contacted Polio. I understand it's a hand to mouth type of germ, so I was probably just being a typical kid. I was hospitalized for a very long time.
In 1994-96 after a major fall breaking my right leg, I had what the doctor termed rapid onset of PPS. I was braced much like you are but for some reason, mostly because I slowed way down it went into remission of sorts until recently. Its once again crept out of hiding and started tormenting me some. Write to me when you get a chance and we can share stories if you'd like. Regards, Susan