Amy Robinson
  • Female
  • Alexandria, TN
  • United States
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Profile Information

Are you a Polio Survivor?
yes
What year did you contract polio?
1979, age 3
Do you have Post-Polio Syndrome?
No (not yet)
List any assistive devices you are using...
Long leg brace, shoe lift
Please describe how polio has changed your life.
I was born in Vietnam where I had polio. My polio was a major factor that allowed my family to come to America in 1986. That turned out to be the first of many blessings to follow. Here I was able to get an education that led me to a good career, and it was in school that I met my wonderful husband (we now have an 8 year old son). My left leg is paralyzed and I have a very severe spinal deformity, but I am able to walk with the help of a long leg brace and shoe lift.
How did you find out about PolioToday.org?
internet search

Comment Wall (38 comments)

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At 9:13am on December 21, 2011, susan fuentez said…

Hi my friend! It is so nice hearing from you! I have really enjoyed our conversations this past year, and like you, I hope we can continue :) It has been a nice holiday around here I must say not as stressful this year as it has been in the past. We will be spending Christmas with family, aside from that it will b a very quiet Christmas. I am glad you are doing well, we must remember to take care of ourselves, and try to get rest when we can. I wish you and your family a blessed holiday! Take care my friend.... :)

At 9:34am on November 14, 2011, susan fuentez said…

Hi my friend! you've been busy! please don't forget to take care of yourself! It's nice of you brother to have thanksgiving! Usually I am the one who does all the cooking, for either davids family or my family... but not this year, my sister and bro in law will be arriving from denver nxt wk. They will be staying here at my house, but david is insisting we go visit his mom, who lives in Marfa tx. sigh. So the good thing is I will not be cooking. But it's tuff having to leave my sis here in my house... the only good thing is that my sis will be coming back for christmas and staying here with me again! :)))) not to sound mean, but i suppose we need to get david's visit with his mom out of the way! :) so relunctantly i will be going out of town.... the good thing is my family and I will be getting together on Sat... to start our Christmas shopping... i am so excited, but at the same time feeling a lil anxiety and overwhelmed, the holidays always do this to me.... What do you during the holidays to rest and take care of yourself???? Somtetimes our braces can hurt a lil more then help huh? I wear mine when I know I will be walking alot, but when I take it off i feel relieved, i suppose we need to keep trying to do what works for ourselves huh? It is hard to find shoes, and anything really to put on our feet, socks, slippers, those are also an issue... I am struggling to find something to keep my feet warm, nothing stays on, or warm. I have resolved to wearing 3 pairs of socks and always making sure i have lil rubber stoppers undersneath sure does make for lots of laundry! take care luv ya!

At 2:34pm on October 26, 2011, susan fuentez said…
HI Amy I am sorry you are not feeling well, I understand back pain, it last for days... it's tuff being in the condition we are in, we suffer the consequences for days... sometimes i just wish it wasn't this way but then again, I don't know anything different. Have you tried placing a heating pad on your back? Or maybe some sort of heating cream, such as tylenol "precise" or tiger balm, those two products help me, when my back is over worked, using those products along with rest, seems to help.I am glad you had a fun time though!  I hav'en't been in a bathing suit for years! I"ve always been self concoius also, although in my younger yrs, I just kinda did what i wanted. Now that i'm older I put too much thought into how others perceive me, i get looked at alot just by going to the grocery store, by all sorts of people children and adults. About a week ago i was in line at a grocery store, i was in a scooter, david had left to go get another item, while i was in line by myself, a man tried to cut in front of me... i forced myself back in line, this man was totally in my personal space, i'm probably just presuming, but I felt like he thought"oh well she's sitting anyway", I've never thought like that until this man tried to cut in line. David returned and stood in front of the man,  not being totally aware of what had happend, but still noticing the man was too close to me.... poeple can be so insensitive sometimes... and down rite rude! I've even had a man cut me off in a handicap parking spot, he got in it before me... and wasn't even handicapp, he didn't have a badge!!!! oh my word. I was so angry! It's tuff being who we are. But I believe we are two strong women!
At 3:01pm on October 24, 2011, susan fuentez said…
Hi AmY I hope you are doing well. I am doing fine, feeling pretty good these past few days.... I am still looking for someone to come and clean my home, although it has proven difficult.... so anyway life goes on. How is everything in your world? Are you getting ready for the cooler days? Here we've just been watching lots of football! lol
At 9:01am on October 12, 2011, susan fuentez said…
Hi Amy, I am glad your home and able to get some rest this week, sounds like you had a nice work week, despite being away from your family. Seeing friends is always nice. I am doing good, already planning for the holidays, turns out my sister and brother n law will be visiting for both holidays, they are bringing there big german shepard with them :( and yes, they stay here at my house. He sheds alot and the cleaning up after him, is tuff on me..  (he is an inside dog) david is basically forcing me to get someone to start coming to clean my house... I am not too happy about it,,,, but i guess it's time. I just don't have the heart to tell my sis she can't bring her dog. I love her too much. :) So aside from that, life is good, I am feeling much better... how have you been feeling???? Are you excited for your trip this weekend??? Sounds like so much fun!
At 5:17pm on October 4, 2011, susan fuentez said…
  1. Hi! As of today,I am feeling better, I've learned how to keep pain in my foot from starting, by keeping it warm. I also have been wearing my brace more which is adding to support that I really need, but you may be right, I have'nt considered tissue damage?? Hmm good suggestion...! I am sorry about your not being able to see Garth Brooks.. maybe another time will b good, the blessing is you've already met him! Oh please be careful on your trip, 8 hrs is a pretty long time but I do see the logic why you chose that route..How have you been feeling? I hope you and your small family are doing fine,,, and please be safe on your trip. take care.    
At 12:31pm on September 27, 2011, susan fuentez said…
That is so amazing to be able to meet your favorite artist! i Hope it all works out for you! Good luck! I am starting to feel better, I just know that I am not myself since the fall. I am weaker and it feels as if my foot is weaker. So I've been really careful and not doing too much. The scooter has been a great help.  I hope all is well for you and your family...:)
At 3:56pm on September 12, 2011, susan fuentez said…
Hi, thank you, yes I am feeling lots better, I know it will take awhile for myself to be back to normal but I am on my way! Oh believe me I know how you feel about using a scooter Ihad to tell myself over and over to use one at walmart, and there are still times I don't use one, but the bottom line is if I don't use one, I soo exhausted by the time we leave the store.  So now,I do use one often.... it's for the best. Wow you have a big month planned! I hope you are able to go see Garth Brooks he is awesome! And going to see some racing sounds like a great time! We aren't planning much of anything... simply just glad it's FOOTBALL SEASON!!!!!!!!! hooray! I love my dallas cowboys!!! How is your son doing in school? I hope all is well!
At 10:48am on September 9, 2011, susan fuentez said…
Thank you! Yes it is always a concern that we could fall and cause injury... I am doing much better now, after 2 wks of serious in home treatments.... although my bad foot does feel weaker now.... :( I know i did some damage to it..... the good thing is that David and I bought me a scooter. I've been using it around the house, and it already is a big improvement for my body..I'm proud of you for going to your son's school and helping out... the children learn soo much from persons like you & I.  I understand how you feel about how children firts react tou you that's how it was for me as a child care director... children were always intimidated by my apperance... eventually it was just the normal thing.... until I started falling down in front of them.... :(  That's when I knew it was time to call it quits... I didn't want them to become afraid of me... Despite all that yes, we are excellent role models.... we teach children to presevere, and to treat every one with dignaty and respect. Have a great weekend my special friend....:)
At 10:30am on September 1, 2011, susan fuentez said…
I wrote 10 yr ride home Lol that's EXACTLY how it felt! It was 10 hrs... :)
 
 
 

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