PPS group leaders & newsletter editors

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PPS group leaders & newsletter editors

This group is for major PPS advocates to share ideas and develop a social network for brain-storming to advance their similiar advocacy efforts

Location: Global
Members: 24
Latest Activity: Feb 6, 2014

Discussion Forum

Richard BrunoPolio: Coming to a Person Near You. Dr. Richard L. Bruno

Richard BrunoPolio: Coming to a Person Near You.Dr. Richard L. BrunoLast November, an unusual polio outbreak occurred in The Congo…Continue

Started by Daniel L. (Dan) Middlebrooks May 12, 2011.

Dr Richard Bruno

.....  From: PPSENG@aol.com Sent: Thursday, July 01, 2010 10:39 AMPLEASE FORWARD to POLIO SURVIVORS and other PPS GROUPS...Yes,…Continue

Started by Daniel L. (Dan) Middlebrooks Jul 1, 2010.

Internet and Radio Broadcast with Barb Gratzke, April 2, 2010 at 7:30 PM EDT

Barbara, I just wanted to let you know that your program on Post Polio will be aired and streamed this Friday April 2nd at 7:30pm Eastern Time. People from throughout the country can hear the show…Continue

Started by Barbara Gratzke Mar 31, 2010.

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Comment by Daniel L. (Dan) Middlebrooks on October 17, 2010 at 12:09am
SWIM THE WARM SPRINGS
Reservations are suggested. 706-655-5870
Limit 80 participants
For more info click on the link
401 Little White House, Road Warm springs, GA 31830
Post Polio Clinic Returns
Roosevelt Warm springs is opening a Post-Polio Clinic
Dr. Kathryn Hoffman, a Physical Medicine & Rehabilitation Specialist has returned to
Roosevelt Warm Springs to lead their Post-Polio Evaluation Clinic.
For Appointments Call: 706-655-5702
Comment by Daniel L. (Dan) Middlebrooks on August 11, 2010 at 6:07pm
Dr Bruno is now a member of Polio Today. You can find him under members. We all owe him so much for what he has done for us all.
Comment by Frances Powell on May 13, 2010 at 6:37pm
I am newsletter editor and 2nd vice president of the First Coast Post Polio support Group, serving northeast Florida and based in Jacksonville, FL I'm glad you've organized this group for those of us charged with keeping the latest information and research about post polio challenges for our members and their families. What super contacts this forum connects us with! I'm looking forward to learning from all of you, as well as sharing.
Comment by Marite V on May 11, 2010 at 1:19pm
Barbara, I too am interested in joining POLIOaworld. Please send me details. Thank you.
Comment by Barbara Angelica Crowe on May 11, 2010 at 10:17am
I m inerested in joining POLIOaworld. I am also trying to start a PPS group that has recently fell aprt due to the death of one of our members. would be interested in ways to proceed. Thanks
Comment by Barbara Gratzke on May 11, 2010 at 8:35am
Hi all,
Seems like my PPS advocacy efforts move at a snail's pace at times due to fatigue and just trying to keep up with the tasks of my every day life, but I tell myself that I just need to keep at it as I can. Anything done is better than nothing has been my motto.

Just to let you know that many major global PPS advocates have informally banded together in a group called Polio World that communicates occasionally through a Yahoo group bulletin board. Please let me know if you would like to join it by emailing me at postpoliomiami@aol.com.

We have agreed to suppor a global photo contest with pictures of pre-polio, after polio, recovery and now. We hope to get pictures from every country and they be made into a collage to be used in media campaigns in supporting the Post Polio Awareness month of October 2010 and the We're Still Here campaign where we want all to focus on medical editors of all type medias to support polio vaccinations and the fact that many were not diagnosed with polio, but are now having PPS symptoms and being miss-diagnosed with ALS and MS etc.

We need some examples of press releases and letters that others may copy and send and also email addresses or other contact information so we can barage a medical editor to focus on our stories. We also need spokesperson's that would be willing to go on a radio or TV show to support our common cause.

Ann gave us all an AARP magazine name and address to use and wondering if there has been any positive response from AARP?

We need to support anyone who comes up witht an idea to "get out the word that PPS does exist" and we need the medical community to educate themselves on it. "There is strength in numbers! Barb Gratzke
Comment by Cilla Webster on March 21, 2010 at 7:49pm
A friend in California sent me some gifts and among them was a beaded snowflake. The purchase of the snowflake pays for the complete set of vaccinations for one child. I think that is a wonderful idea and continues to highlight the need for vaccinations.
Comment by Barbara Gratzke on March 21, 2010 at 2:57pm
Don't know where the days go, but take each day as it comes and prioritize what needs to be done that day and do as my time and energy allows. I started this group with best intentions of being more active and stimulating conversations that would be useful to all. To that end, I'm hoping ya'll will post ideas about all working together to fulfill our goals to promote more Post Polio awareness globally. I've tossed out the idea of us all identifying medical editors of TV, radio, newspapers, magazines etc. during the month of October this year ("Post Polio Awareness Month) and telling them about how many have forgotten or do not know how terrifying polio epedemics are and are not vaccinating their children and also how a vast majority had polio, but were not diagnosed, but now are having symptoms of PPS and many being miss-diagnode with Multiple Sclerosis or ALS (Lou Gehrig's Disease) which are fatal as major life-organs are affected in those diseases. Thus, the symptoms of polio and PPS can be listed so all are aware of them. Appreciate your ideas.
Comment by Consuelo Ruiz on February 28, 2010 at 4:35pm
Hello Carol
I welcome you from Madrid -Spain.
Greetings
Comment by Leslie D. Smith on February 26, 2010 at 11:37am
This discussion is about leaders and I have wondered who is now taking up the post that Lee Seitz of the San Fernando Valley PPSG had so successfully done over the years as a leader. Our Sacramento group exchanged newsletters with SFV for some time and the February issue came back as "unable to forward." I do not know how successful the group was but had talked with Lee over the phone a few times. She was very helpful and I appreciated her support.
 

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