International Post Polio Support Organization


International Post Polio Support Organization

Internationl Internet based post polio syndrome support organization. We are here to support and educate those with PPS, we have a bulletin board, website, monthhly Magazine and all are welcome to join us!

Location: World Wide Internet group.
Members: 25
Latest Activity: Apr 1, 2014

Discussion Forum

New survivor needs our help 2 Replies

I do need to correct you on one major note. The polio is not active again!!!!! your damaged motor nerves after initial infection were able to sprout little nerve ending that for a certain amount of…Continue

Started by Daniel L. (Dan) Middlebrooks. Last reply by Susan Clay Oct 15, 2010.

New survivor needs our help

I do need to correct you on one major note. The polio is not active again!!!!! your damaged motor nerves after initial infection were able to sprout little nerve ending that for a certain amount of…Continue

Started by Daniel L. (Dan) Middlebrooks Oct 14, 2010.

New survivor needs our help

I do need to correct you on one major note. The polio is not active again!!!!! your damaged motor nerves after initial infection were able to sprout little nerve ending that for a certain amount of…Continue

Started by Daniel L. (Dan) Middlebrooks Oct 14, 2010.

Comment Wall


You need to be a member of International Post Polio Support Organization to add comments!

Comment by JAMES E DAVIS JR on August 22, 2011 at 11:49pm
I am honored to be a new member of this group. Since am posting in the very early morning hours and need to get some sleep I will be brief. I am 55 years od and live in Fort Pierce FL. I was stricken with polio in October 1959 and severly affected from the waist down. I was treated for three months in Warm Springs Georgia. I am employed full-time as a Human Resources Specialist. Recently my whole life has changed where I have now found a need to join friends in the polio community. Our numbers I suspect grows smaller as the years pass. I will return soon in hopes I can get to know you all and share a bit more of myself with you. Thank you sincerely for having me here.
Comment by Daniel L. (Dan) Middlebrooks on May 12, 2011 at 4:11pm
Richard Bruno
Polio: Coming to a Person Near You.
Dr. Richard L. Bruno

Last November, an unusual polio outbreak occurred in The Congo Republic. A “wild” (naturally-occurring) Type I poliovirus, imported from Angola, has paralyzed at least 409 and killed 170. What is unusual is that those affected are not children under five but adults 15 to 29 and that 41% have died, versus the norm of 15% in an epidemic. Historically, more deaths do occur when older individuals get polio, but not nearly half. This epidemic, in a country that had been polio free for ten years, adds to the continued outbreaks in countries where polio remains endemic: Afghanistan, India, Nigeria and Pakistan.

There is an aspect of the Congo epidemic that is not unusual: There has been no mention of it in the American press. However, there was wide-spread attention in given to a polio outbreak in May 2010. A wild Type I poliovirus imported from India triggered an epidemic in Tajikistan that spread to three other previously polio-free countries and all the way to Moscow, affecting 476. This outbreak was more typical; 86% of those initially infected were children and 6% died.

This European pandemic caused the American Academy of Pediatricians in July 2010 to warn that “Low immunization rates in parts of U.S. could pave way for polio outbreak (showing) “how precarious our control of the disease can be when immunization rates fall below the target level of 90%. The polio immunization rate in Tajikistan is 87%.” The article goes on to warn that “polio immunization rates are lower than 90% in many areas of the United States” because of parents having “no recent experience” with polio, “concerns about vaccine safety and religious objections to immunization. With increasing globalization, the United States could be just an asymptomatic traveler away from an outbreak.” Remember, 70% of individuals infected with the poliovirus have <I>no<I> symptoms but can carry and spread the disease.


In 2007, the International Post-Polio Task Force began the National Immunization for Polio Prevention in Infants and Toddlers -- or "NIPP IT" – Campaign, when CDC reported drops in polio vaccination and that <I>one million<I> US infants and toddlers were unvaccinated against polio. The NIPP IT motto: “America's next polio epidemic could be just a plane ride away.”

This theme was adopted by an August 2010 “Houston Chronicle” editorial: “Polio's return to Tajikistan has raised some unsettling questions. International medical activists had planned to snuff out the disease by 2000. What's going wrong? The ongoing problem seems to be a mix of factors. Some are political, such as Muslim leaders in Nigeria who originally branded the vaccine a western sterilization plot. Meanwhile, isolated tribes or subcultures can harbor the disease.”
Not mentioned were the effects of war and corruption, lack of sanitation, basic public health and medical infrastructure and that the Sabin oral vaccine mutates and actually <I>causes<I> polio.

The editorial concludes, “Houston residents have reason to watch this battle and wish its warriors well. Even if polio is almost gone, the last cases will always be only a plane ride away from our own city.”
Indeed, Houstonians need worry. CDC found that Houston has the lowest polio vaccination rate of any reported US city -- 87% -- a drop of 5% from last year.

"Polio outbreaks highlight our global vulnerability to infectious disease," said Dr. Robert Scott, chair of Rotary’s polio eradication effort. "It reinforces the fact that polio 'control' is not an option, and only successful eradication will stop the disease."
Unfortunately, eradication is not happening in spite of $800 million spent on vaccination. In 2010, polio was at all time high in Pakistan, primarily in the war-torn Tribal Areas bordering Afganistan.

Perhaps it is time to admit that polio eradication is not possible given the political and social conditions in the Third World. Perhaps the millions being raised for polio eradication would be better spent, as the Chronicle proposed, “improving health care or hygiene more broadly,” and, as Dr. Scott prescribed, a "fast, large-scale, high-quality immunization response” to any polio outbreaks, plus treatment for polio survivors and those with Post-Polio Sequelae.

The International Post-Polio Task Force has proclaimed 2011 “The Year of Getting Serious About Polio,” serious about vaccinating America’s children, about treating the world’s <I>20 million<I> polio survivors who have Post-Polio Sequelae and about containing -- not eliminating -- polio.
Comment by Shari Fiksdal on October 31, 2010 at 7:20pm
Thank you Dan for letting us know about Warm Springs, sure would be fun to go. Shari
Comment by Daniel L. (Dan) Middlebrooks on October 17, 2010 at 12:07am
Reservations are suggested. 706-655-5870
Limit 80 participants
For more info click on the link
401 Little White House, Road Warm springs, GA 31830
Post Polio Clinic Returns
Roosevelt Warm springs is opening a Post-Polio Clinic
Dr. Kathryn Hoffman, a Physical Medicine & Rehabilitation Specialist has returned to
Roosevelt Warm Springs to lead their Post-Polio Evaluation Clinic.
For Appointments Call: 706-655-5702
Comment by Daniel L. (Dan) Middlebrooks on July 1, 2010 at 5:30pm
[InfoPolio] Reports of the death of The Post-Polio Institute have been grossly exaggerated!

Sent: Thursday, July 01, 2010 10:39 AM


Yes, The Post-Polio Institute has been closed at Englewood Hospital.

The hospital is millions in the red, lost 3% of its patients last year and has already lost another 3% this year. A hospital VP came and told me that The Post-Polio Institute was "in the red" and that I am personally financially responsible for all of the expenses of the Institute, from my assistant's and therapists' salaries to the cost of toilet paper. This is a violation of my contract that says the hospital will provide all of these things, which they had provided for the past 12 years.

I was able to raise $25,000, exactly the amount the Institute was supposedly “in the red.” But, that money is not being applied to my expenses. What's more, the hospital is trying to use International Centre for Post-Polio Education and Research grant funds to pay patient bills. Englewood Hospital is not a place that I want my patients to be, and certainly not a place that I want to be.

But, The Post-Polio Institute and The International Centre for Post-Polio Education and Research live!

I'm looking for a new location and I think I've found one. But, for now, as always, please contact me at:

if I can be of help.

Thank you for your patience, consideration and the dozens of e-mails and calls of support I've received during this time of transition.

Something's coming, something good!

Enjoy the summer,


Dr. Richard L. Bruno
International Post-Polio Task Force
The Post-Polio Institute
International Centre for Post-Polio Education and Research
Comment by Barbara Gratzke on March 23, 2010 at 9:53am
Alfreda, Thanks for the update. So many polio survivors worry about having replacements as wonder if they will be able to recover without any loss of function. Keep us informed.
Comment by Leslie D. Smith on March 22, 2010 at 6:35pm
Alfreda, Back on December 16, 2009 you had a left shoulder replacement and now have given an update today (March 22, 2010) It has made me curious about your surgery as I had never heard of a shoulder being replaced. I have had shoulder surgery to repair the rotator cuff in June 2008 which went supper well for me on my left shoulder. My problem was mainly overuse of the good arm. For others who overuse and damage hip and knee joints I have read or talked with other polio survivors. The replacement was for the overuse of their joints compensating for the weaker polio limb. I am glad for you that you are mobile again and all is going well from the surgery.
Comment by Stella Newall on March 22, 2010 at 3:57pm
It sounds as though you improving by leaps and bounds Alfreda. Congratulations, you're certainly earning the improvements.
Comment by Alfreda Simpson on March 22, 2010 at 3:47pm
Shoulder Replacement Update: Having some trouble lifting arm to the side and shoulder high. Doing strength training and manual manipulation. New exercises were added along with a prescription for eight more weeks of therapy. Small signs of improvement every day. Driving is OK -- reaching for the door to close it takes a little effort and releasing the brake the first few days was a challenge. It is great to be mobile again and I'm glad I had the surgery.
Comment by Barbara Gratzke on February 26, 2010 at 9:07am
Hi all,

Just checking in to see how you are all doing. Many are having bad weather, including ice and snow and unusually cold temperatures, which we PPSer's, especially, don't like to cope with. I live in South Florida USA which usually had warm weather and have had to wear leggings even to bed as my feet are like ice, if the temperatures drop below 50 degrees.

Members (25)



  • Add Photos
  • View All

Spread the word about

Post a flyer: You can let others know about by downloading this flyer and posting it on a local bulletin board and/or bringing it to your local PPS support group.

Invite your friends: You can easily send out email invitations to join

© 2020   Created by Salk Institute.   Powered by

Badges  |  Report an Issue  |  Terms of Service