redness starting in my feet and creeping up my legs, scareing me. I have been to two doctors and I get antibiotics. My legs get better, then redness comes back. Any ideas?
Presumably at least one of the docs was a derm?
Some of it, I'm sorry to say, is just old age. And generally PPS folks have problems with the blood vessels in the lower legs -- the nerves that constrict them do not work well, leading to redness and swelling. Exercise can help.
Antibiotics are unlikely to do much good (and could do some harm) in the absence of a known infection. I did have a problem with a body-wide fungus infection that was especially bad on the feet and legs, but that caused more of a white scale than redness. Cleared up with oral Lamisil.
Thank you for responding. I'm a little slow in finding my way around "replies". I just saw your answer today.
Do you have neurophathy? Is there any pain with the redness? As I age I have found the same problem you are having. No one knows the answer I have found with all that I talk to. I think Dan probably was right on the money about blood vessels. Hopefully you will get more response soon.
Thank you for responding. There is some pain with the redness, but knowing others have this problem and don't know the answer, actually takes some of the anxiety away.
Please do not hesitate to jot me a note any time./ I'm here for you and you'll find many more members more then happy to respond as well.
How long have you hadd PPS and went did you contact Polio if you don't mind me asking.
I contracted polio in 1952 when I was fifteen years old. I was hospitalized from August to January. and I was in rehab in Warm Springs GA, until the following August. My PPS really kicked in, in 1984. I became completely paralyzed again in 2003 with Guillain Barre. I published a book, Amazing Courage, my life as a Polio Survivor, in 2009. It can be purchased on Nook, Kindle and through Amazon. I hope my book is an inspiration to others. Please tell me about yourself, I feel you are a very positive person, and I thank you for your help. I'm hoping to be able to go to the polio clinic at UCLA in the near future.
i m new to this group. Read about ur problem wanna ask u does it have a swelling when it gets red or is there any itching around the area.Can u just upload a photo if the problem is still there ?
Margaret, I'm not sure about the "redness" but I do know for a fact from having read Dr. Richard Bruno's book, "The Polio Paradox" that it is common for polio survivors legs and feet to become VERY cold. This began to happen to me just a few years back and from Dr. Bruno's advise I began to wear sock liners and long-johns which seem to help but the one thing that really works for me is to lay down and after awhile my feet and legs begin to warm up and the color will turn back to normal. When cold the skin turns a pale white and as they warm up the color returns to pink. It maybe the same for you but that is hard to say as I'm not a doctor and unfortunately, other than Dr. Bruno there has been no physician with even a smidgen of knowledge about Post Polio Sequalia (PPS). I am about doctored out myself and have a dread and severe anxiety when I visit with a doctor. I have an orthopedic, neurologist, cardiologist, primary MD, pediotrist, psychitrist and not one knows anything about PPS. Get Dr. Bruno's book if you can. One thing I have learned the hard way is we have to self educate ourselves about PPS and we have to voice our concerns to our physicians. If they appear uninterested then believe me, you have no need for them and it is best to find another. A short time back I had a neurologist say to me, "YOU DO NOT HAVE POLIO AND THERE IS NOTHING I CAN DO FOR YOU!". Not only did this "hurt" coming from a professional but it angered me more than I have ever been angered. I told him, "I know I DON'T have polio, I HAD polio. I don't think you are the doctor for me." Looking me straight in the eyes he said, "Nether do I. You need to keep seeing your psychiotrist. Call if you need me." To this day my anxiety goes off the charts when I am forced to see a physician. As for the redness in your legs, if it is still occuring and you are concerned then by all means, make a few phone calls to find a physician who is willing to keep an open mind regarding PPS and will listen to your concerns. For me, if I know what the problem is then I can learn to deal with it, it is the NOT knowing that bothers me. I wish you well and hope you get an answer. God bless. -James-
(It should be noted that Dr Bruno is not a "physician". And Julie Silver (who IS an MD) has written a pretty good book on PPS.)
You will look high and low and still will find a rare doctor that knows Polio, let along PPS. When you find some doctor that does he hasn't the money to be able to keep up the converstation that you are starving for,
Look towards a group like this. Find other groups.............keep asking questions...................not with anger, not with fear.................just look for support................someone to talk to......to discuss with.......to cry if need be. Time is your only healer.
I am told that the standard curriculum for physiatrist training includes PPS. However, physiatrists are scarcer than hens' teeth.
Otherwise, all the docs who know polio are either retired or dead.