I've been in this PPS since 1994.......I'm coping.  Just wondering how anyone else's family and friends are doing with your diagnosis.  I"m finding through the years that "they" are not understanding my limits.  Now don't get me wrong.......through the years I have been super women to everyone and all things. It just seems now, when I'm really struggling I'm not feeling that they understand. Are you feeling the same thing?

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My wife of 36 years has had juvenile diabetes (Type I) since age 9.  She complains sometimes that I don't understand her (and to a degree it's true).  No one really understands anyone else.

It is especially hard if you have an "invisible" disability -- nothing to visibly remind others of your problem (and nothing to clue in strangers).

But we all have burdens we must bear.

Any disability is a tough call.  Especially so when you've been a force of power to all those around you and suddenly you are not anymore.

Hi,

Actually yes.  It's hard for anybody to understand that post polio people get weaker and get more if we do anything. I think we are in denial many times and do the opposite of what we should do.  With me it started going difficult for me ten years ago, and now I can do hardly anything without getting worse and have a heck of a time sleeping.  Just way to uncomfortable and a lot of pain.  I recommend to anybody in our position to be very, very careful and do minimal physical anything.  Now I'm almost at the point where I was went I had polio and completely paralyzed. So, do the best you can and be careful.

Hi,

Actually yes.  It's hard for anybody to understand that post polio people get weaker and get more if we do anything. I think we are in denial many times and do the opposite of what we should do.  With me it started going difficult for me ten years ago, and now I can do hardly anything without getting worse and have a heck of a time sleeping.  Just way to uncomfortable and a lot of pain.  I recommend to anybody in our position to be very, very careful and do minimal physical anything.  Now I'm almost at the point where I was went I had polio and completely paralyzed. So, do the best you can and be careful.

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