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stance control KAFO

hello, i am considering a stance control KAFO to replace a regular KAFO.  has anyone done this?  and if so, what pros/cons did you experien…

Started by thomas m blastic

5 Aug 22, 2016
Reply by Mary Antone


I have to start taking Lipitor for high cholesterol and the Dr. told me to watch for the side  effects of muscle weakness, fatigue etc. I h…

Started by Gretchen Winchester

5 Jul 6, 2016
Reply by Dan Hicks

Multiple Sclerosis

Has anyone out there been so "fortunate" as to get MS on top of their post-polio symptoms?  I recall reading way back when that some "exper…

Started by Dan Hicks

0 Jun 30, 2016

Low dopamine levels

Hi, im really curious, has any one ever been tested  for low dopamine levels? Does anyone have symptoms of low dopamine levels? It is my un…

Started by susan fuentez

2 Apr 27, 2016
Reply by susan fuentez

Relaxing with beer

So, is there anyone else out there who finds that having a good home-brew or micro-brew (unpasteurized so all the healthy yeasts and B vita…

Started by Margaret G Carson

3 Feb 15, 2016
Reply by Dan Hicks

How to get an AFO?

I'm a "mildly affected" PPSer who has up to this point not used any orthotics.  (In fact, I don't have a "polio doc" of any kind.) It's get…

Started by Dan Hicks

5 Nov 13, 2015
Reply by Dan Hicks


I have a problem with curiosity and I have one question that entered my mind about 20 years ago, and that was "what is the longetivity of a…

Started by Thomas Maske

18 Oct 18, 2015
Reply by Susan Polivka

Aqua therapy

 Hi, has anyone done aqua therapy for PPS and what were the results. I'm wondering if it was just temporary while in the water or were ther…

Started by Cheryl Stanton

0 Oct 16, 2015

Any survivors in their 30s and 40s?

Hello fellow survivors.  In my 38 years, I have yet to meet a survivor close to my age group.  Are you out there?  I'd like to chat with yo…

Started by HF

4 Sep 3, 2015
Reply by susan fuentez


Can any of you tell me how you deal with the problem of two different shoe sizes.... I'm really tired to having to buy two pairs & basi…

Started by Susan Polivka

6 Apr 18, 2015
Reply by Susan Polivka



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