PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.

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Profile IconAnnmarie Tidwell, Dennis T., Rebecca Pitcher and 2 more joined Polio Today
Thursday
Dan Hicks replied to Barbara York's discussion eye muscle damage?
"One thing that occurs to me is that "myoadenylate deaminase deficiency" could lead to this pain (and associated eye muscle damage).  It's a "metabolic disorder" (usually genetic) that occurs in about 5% of the…"
Nov 20
Christine Peverill replied to Barbara York's discussion eye muscle damage?
"just saw this i had been going on for years with my doctor about polio causing my eye problems only to be more or less laughed at, only this year did a specialist in london examine and finally agree with me of the 6 eye muscles four of mine are…"
Nov 20
Cheryl Stanton replied to Dan Hicks's discussion Aspartame
"Hi, I have always been a eating organic kind of girl and for decades I haven't used aspartame or anything artificial.  I personally think that's why my PPS didn't manifest for decades. Fast forward, for 10 years now PPS has taken…"
Nov 10
Dan Hicks posted a discussion

Aspartame

Has anyone else noticed a sensitivity to aspartame, the artificial sweetener in Diet Coke and most other diet pops?I have had problems with kidney stones for years, and finally was getting them under controls with D-ribose and potassium citrate, but was still having serious problems with urinary urgency/frequency.  So, on a hunch I cut out aspartame, and the urinary symptoms improved significantly within a couple of days.  After several weeks I'm not quite "normal" in this department, but can…See More
Nov 10
Jack Campbell posted a status
"Jack died from bladder cancer in 2012."
Nov 10
Lizabeth Uribe shared Judy Mahoney's group on Facebook
Oct 19
Dan Hicks left a comment for Victor Pintado
"Welcome!  Sad to say that traffic here has really fallen off (by about a factor of ten) in the past year or two, but there are a few loyal souls about.  Please "Add a discussion" on the "Forum" to introduce yourself!"
Oct 14

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eye muscle damage? 17 Replies

Has anyone else encountered damage to eye muscles due to polio?  My eye doctor has seen this before in polios, but is, of course, in process of ruling out other causes.  However, there  appears to…Continue

Started by Barbara York in Connecting. Last reply by Dan Hicks Nov 20.

Aspartame 1 Reply

Has anyone else noticed a sensitivity to aspartame, the artificial sweetener in Diet Coke and most other diet pops?I have had problems with kidney stones for years, and finally was getting them under…Continue

Tags: aspartame, urinary, stones, kidney, Pain

Started by Dan Hicks in Symptoms. Last reply by Cheryl Stanton Nov 10.

I promised I would let you know how my experiment turned out 8 Replies

Post Polio Syndrome robbed me of my enjoyment in life until I began taking this supplement.  As I promised, I am giving you the information about the product I found that has given me back more…Continue

Started by Dolores Sieg in Connecting. Last reply by Larry La Penta Oct 3.

Portable power wheel chairs? 7 Replies

Does anyone have the portable Wheelchair88 or the Smart Chair and do you like it, pro's and con's please?Continue

Started by Barbara Ann Loska in Connecting. Last reply by Jerry Sep 25.

stance control KAFO 5 Replies

hello,i am considering a stance control KAFO to replace a regular KAFO.  has anyone done this?  and if so, what pros/cons did you experience?thank you,thomasContinue

Started by thomas m blastic in Connecting. Last reply by Mary Antone Aug 22.

Lipitor 5 Replies

I have to start taking Lipitor for high cholesterol and the Dr. told me to watch for the side effects of muscle weakness, fatigue etc. I have that already with PPS. How would I know.Has anyone had…Continue

Started by Gretchen Winchester in Connecting. Last reply by Dan Hicks Jul 6.

 
 
 

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