PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.

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Carolyn Mitchell posted a group
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Spartanburg PPS Support Group

Focus is to provide medical information as well as an outlet to share PPS experiences-- travel, personal care, emotional ups and downs, life style management in general, etc.See More
yesterday
Bernard Steinberg replied to Bernard Steinberg's discussion Neuropathy
"Thanks Dan, I will look into it.  remember the important thing is it works."
Tuesday
Dan Hicks replied to Bernard Steinberg's discussion Neuropathy
"Be aware that Metanx is a combo of Metafolin, methyl B12, and B6 -- three supplements that you can buy OTC relatively cheaply."
Tuesday
Gretchen Winchester posted a discussion

PPS and Social Security Disability

I am a new member and have been reading post from others. I see a lot of survivors are worried about getting SSDI. They should not worry. The ruling for PPS and SSDI camedown in July 2, 2003.  You DO NOT need a lawyer to apply for SSDI. It is easy and you can do it on the phone. The people are so nice. Please go to the following web site and read theprocess.   www.postpolioinfo.com/ssdisability2.phpThe article explains how to get…See More
Jul 18
Bernard Steinberg commented on Susan Jean Mauro-Bemme's photo
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Polio brace

"Isn't it amazing that we all wore braces when we were young, and then we were "cured ".  Only to find out all these years later that "SURPRISE" P.P.S.  I have used braces until my legs atrophied to a point…"
Jul 17
Bernard Steinberg posted a discussion

Neuropathy

I have severe Neuropathy from both PPPs and Diabetes, and have tried all the so-called meds that the Drs use.  As I am also diabetic my Endocrinologist put me on Metanx, and got almost immediate relief.  I have been taking it twice a day for several years now, and it still is doing the job.  The only problem I have is it is not covered by health insurance or Medicare. I have been able to get my RX filled at Brand Direct Health in Louisiana for substantially less than the $400…See More
Jul 17
Gretchen Winchester replied to Brenda Benavides's discussion Disability
"There is no way to get turned down my SS. PPS is now a recognized disability with SS and has been been for a few years. I just called SS direct a few years ago and they could not have been more helpful. Did everything over the phone and by mail. I…"
Jul 17
Gretchen Winchester replied to Mary Gerloff's discussion Pain Medication or Muscle Relaxers for Severe Muscle Spasms
"My Internist has me take cyclobenzaprine 10mg. before bed. It is an anti-spasmatic. G Winchester ( new member)"
Jul 17

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Neuropathy 2 Replies

I have severe Neuropathy from both PPPs and Diabetes, and have tried all the so-called meds that the Drs use.  As I am also diabetic my Endocrinologist put me on Metanx, and got almost immediate…Continue

Tags: Neuropathy

Started by Bernard Steinberg in Symptoms. Last reply by Bernard Steinberg on Tuesday.

PPS and Social Security Disability

I am a new member and have been reading post from others. I see a lot of survivors are worried about getting SSDI. They should not worry. The ruling for PPS and SSDI camedown in July 2, 2003.  You DO…Continue

Started by Gretchen Winchester in Connecting Jul 18.

Disability 12 Replies

Hello Everyone,I am new at this. Has anyone applied for ssdi. I worked up until May 2010. I have a lawyer filing for my disability, but I am very nervious I am going to get turned down. I never…Continue

Started by Brenda Benavides in Connecting. Last reply by Gretchen Winchester Jul 17.

Pain Medication or Muscle Relaxers for Severe Muscle Spasms 15 Replies

I'm curious as to what others who have PPS use to manage their pain and/or muscle spasms.  I use generic Soma and it helps a lot with the spasms.  I don't have any side effects such as being dizzy or…Continue

Started by Mary Gerloff in Connecting. Last reply by Gretchen Winchester Jul 17.

Back from my bike trip

Due to some serious wind and rain issues I only completed two of the five 50+ mile days, but I survived.  Camping is getting to be more of a problem for me -- setting up/taking down my tent is…Continue

Started by Dan Hicks in Connecting Jun 21.

Managing with Polio 4 Replies

I had back surgery last year and it went well. However they got me up walking without my brace and ever since then the hamstring in my right (polio) leg is really painful.  Less pain with the brace…Continue

Started by Donna Baltakis in Connecting. Last reply by Dan Hicks May 17.

 
 
 

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