PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.

Latest Activity

susan fuentez replied to Thomas Maske's discussion Survey
"Thank you! I have wrote all these books down, and will look into them... and the library will be the first place I look! It's difficult to find information on our condition, as we have seem to be forgotten. I will never give up and  I know…"
21 hours ago
Nancy Nye replied to Thomas Maske's discussion Survey
"Susan, It's been about 7 years since I read Dr Bruno's book, and I had another book at that time, but don't remember the name - it was not the best, and not pertinent to helping 'me' work through my process.....Dr.…"
yesterday
susan fuentez replied to Thomas Maske's discussion Survey
"Thank you Nancy, I agree my doctors have my best interest at heart. I have read Dr. Bruno's book and funny, I am currently reading it again. It is a great book, and I am still learning about my condition. I will look into contacting Dr Bruno,…"
yesterday
Nancy Nye replied to Susan Polivka's discussion Shoes
"Hi Susan The department store is Nordstroms.  I went to our local Nordstroms and told them what I needed and the sales person went and got their specially trained associate to help me out. Told her what I was looking for and left with a…"
yesterday
Nancy Nye replied to Thomas Maske's discussion Survey
"Susan You have a very intelligent doctor - so many don't believe in such a thing as PPS.  I have found that Dr. Bruno's book on PPS is extremely good for both the physicians and for others wanting to find out more about it.…"
yesterday
susan fuentez replied to Thomas Maske's discussion Survey
"Hi, I suppose I'm one of the younger polio survivors, I contracted polio at 2mths old ,in 1970. I am now 45. I have a weakened right leg, and walk with a limp. My right foot is about 1 inch smaller then my left foot.I have had 2 surgeries that…"
yesterday
Dan Hicks replied to Susan Polivka's discussion Shoes
"There was a thread on this a year or two back.  One of the national department stores (Macy's?) has a policy of allowing you to "split" pairs, at least for certain shoes.  And there are a few shoe exchanges around. …"
Mar 22
Susan Polivka replied to Linda Wincenc Dobkin's discussion Knee surgery on "good" leg--yes or no?
"Morning Shari, after reading your reply I do need to say that I'm not sorry that I had my knee done again...with the surgeon using the right knee replacement I no longer need my AKFO & I can stand in the shower with out pain. I also had…"
Mar 22

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Survey 12 Replies

I have a problem with curiosity and I have one question that entered my mind about 20 years ago, and that was "what is the longetivity of a person who has had polio?" I knew it had to depend on the…Continue

Started by Thomas Maske in Connecting. Last reply by susan fuentez 21 hours ago.

Shoes 2 Replies

Can any of you tell me how you deal with the problem of two different shoe sizes.... I'm really tired to having to buy two pairs & basically throwing the unused pair away.  Any suggestions would…Continue

Started by Susan Polivka in Connecting. Last reply by Nancy Nye yesterday.

Knee surgery on "good" leg--yes or no? 9 Replies

I am looking for support in my decision to have TKR on my good leg. How are those of you who have had this surgery doing now? Are you glad you had it done? Did rehab make your polio leg worse? My…Continue

Started by Linda Wincenc Dobkin in Connecting. Last reply by Susan Polivka Mar 22.

The Salk Vaccine - a question - 4 Replies

We have an interesting question from a member of our group.  His mother told him he got polio (in 1955) after having the vaccine in a sugar cube.  I always believed, and from what I've been able to…Continue

Started by Carol Ferguson in Connecting. Last reply by Dan Hicks Feb 26.

Received Disability 1 Reply

I have received by award letter after one attempt and no professional assistance. My suggestions are answer all questions honestly and completely, and complete all parts of the application.  Do not…Continue

Started by Carolyn Mitchell in Connecting. Last reply by JAMES E DAVIS JR Jan 10.

Fatigue and Shakes 12 Replies

I seem to be having some different weakness on my strong side.  Since my knee replacement last year (on my strong side), I have less energy and often tremble after walking from the car to the front…Continue

Started by Barbara Angelica Crowe in Connecting. Last reply by shari Johnston Dec 20, 2014.

 
 
 

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