"If statins are a problem for you (but you would still like to continue taking them) you can try taking a fairly high dose of CoQ-10 ("food supplement"). This actually worked briefly for me, though it seemed to lose effectiveness and…"
PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.
Events
Latest Activity
joseph m gifford replied to joseph m gifford's discussion leg and foot pain"I am running my own test as I will stop taking statin drugs for the next 10 days or so. hope to report on my test later."
Dan Hicks replied to joseph m gifford's discussion leg and foot pain"About 15 years ago, on a different polio forum, I did a sort of informal "sampling" of folks there who reported pain that was consistent with their statin use. I forget the exact numbers, but it appeared that statin use was at least…"
joseph m gifford replied to joseph m gifford's discussion leg and foot pain"i would like to hear more about pain caused by cholesterol med. I have heard of it but never thought that could be part of the problem. I might try skipping a few days with out taking any and see what happens. at this point I must admit I am pretty…"
Gretchen Winchester replied to joseph m gifford's discussion leg and foot pain"Have you tried CBD Cannabis( legal in all 50 states)?
I chew a CBD Gummie with a sleep aid before I go to bed, sometimes two if I really hurt. It helps a lot.
I do not like drugs and the side effects and you can not overdose on CBD.
Might be worth a…"
Dan Hicks replied to shari Johnston's discussion Sore neck musscles"Also I'll note that I have for 10-15 years used a "wedge" pillow (I'm thinking it's a 7" one) to elevate my head and shoulders. This was originally for heartburn, and it's been so long I can't say what…"
Dan Hicks replied to shari Johnston's discussion Sore neck musscles"It's a bit of a long shot, but you should try D-ribose. It's reasonably cheap and quite safe."
Badge
Forum
leg and foot pain 14 Replies
I haven't visited this page for a long time don't know why but maybe because I was flat trying to ignore problems and pain. lately I have had a lot of pain in my legs feet and all over. I can be…Continue
Started by joseph m gifford in Symptoms. Last reply by Dan Hicks on Thursday.
Sore neck musscles 22 Replies
sore neck muscles, sometimes just one side from ear down into into shoulder, with the muscles in the neck being the most painful. Has anyone else had such an issue? They are very sore to the touch.Continue
Started by shari Johnston in Symptoms. Last reply by Dan Hicks Jul 10.
Health benefits of CBD Oil ( Cannabis oil ) 23 Replies
I have been taking CBD Oil for a month now and can't believe how much better I feel.CBD Oil is legal and available in all 50 states. It does not contain the THC that is in marijuana that makes one…Continue
Started by Gretchen Winchester in Connecting. Last reply by Gretchen Winchester Jul 9.
I'm new to this website and I don't know anybody 3 Replies
Hello,My name is Susie. I'm new on this site. I have had PostPolio since I was an infant. It affected my left leg. I can still walk, but I walk with a limp. I'm looking to connect with people who…Continue
Started by Susie kearney in Connecting. Last reply by Gretchen Winchester Jul 9.
Magnesium 2 Replies
One recent discovery I've made is that I've apparently been deficient in the mineral magnesium for some time (possibly most of my life).It's kind of complicated how I came to suspect this, but a…Continue
Started by Dan Hicks in Diagnosis and Treatment of PPS. Last reply by Dan Hicks Mar 31.
Photos
Groups
-
Pennsylvania Polio Survi…
1 member
-
Riverside Area Polio Sur…
1 member
-
Spartanburg PPS Support…
1 member
-
San Diego North PPS Group
4 members
-
Silicon Valley Post Poli…
2 members
Spread the word about PolioToday.org
|
|
|
Post a flyer: You can let others know about PolioToday.org by downloading this flyer and posting it on a local bulletin board and/or bringing it to your local PPS support group. Invite your friends: You can easily send out email invitations to join PolioToday.org |
© 2017 Created by Salk Institute.
Powered by
