PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.

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Dan Hicks replied to Gretchen Winchester's discussion Increased fatigue
"One thing to add:  A few months back I switched from Flomax (for urinary difficulties) to Alfuzosin, mostly because the Flomax causes rhinitis (runny nose).  When my head cleared up it strangely improved my fatigue situation quite a…"
Monday
Dan Hicks replied to Gretchen Winchester's discussion Increased fatigue
"I think we've all noticed increased fatigue.  Chronic fatigue syndrome (CFS) kind of comes with PPS.  I did, for a few years, benefit from taking the ADHD drug Strattera (prescribed by a psychiatrist), but the effect got weaker and…"
Sunday
Gretchen Winchester posted a discussion

Increased fatigue

Has anyone noticed increased fatigue with aging?I read some articles on a PPS blog and it was mentioned a PM&R Physician might help.Called Physiatry. They help people recover from injury or disease.Has anyone gone or benefitted from this?ThanksG WinchesterSee More
Sunday
joseph m gifford replied to Larry Kueneman's discussion Two bothersome conditions, probably polio related
"Interesting I also have face blindness, I try to look and memorize what people look like and the next time I see them I flat dont remember them. I am pretty good at voice memory and a lot of time when they speak I know who they are. One time I met a…"
Sep 3
Dan Hicks replied to Gretchen Winchester's discussion Night time leg cramps
"One thing to consider if you have leg cramps is your iron level.  PPSers tend to have low iron levels, due to rhabdo, and this can cause "restless leg syndrome". If you suspect this, though, first have your doc check your FERRITIN…"
Aug 15
Gretchen Winchester posted a discussion

Night time leg cramps

I used to take cyclobenzaprin for muscle spasms at night. This made me groggy the next day. Finally my arthritis Dr. prescribed gabapentin. What a relief! I started with 100mg. Then I went to 200 mg. No more spasms and cramping. I went online and did some research and come to find out it is recommended for PPS.Give it a try.See More
Aug 15
Salk Institute posted a discussion

INTERNATIONAL LIVE PPS WEBCAST with Dr. Richard L. Bruno

Save the Date!!Saturday, SEPTEMBER 15, 201810:00 AM US Western Daylight Time1:00 PM US Eastern Daylight Time5:00 PM European/UK GMTGET YOUR QUESTIONS READY!Join the live webcast and get details at www.papolionetwork.orgSee More
Jul 25
Dan Hicks replied to Larry Kueneman's discussion Two bothersome conditions, probably polio related
"I have what is known as "face blindness" which I attribute to my polio (at age 2).  This is difficulty recognizing people and connecting names with faces.  Interestingly, it is also associated with difficulties with "map…"
Jul 22

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Increased fatigue 2 Replies

Has anyone noticed increased fatigue with aging?I read some articles on a PPS blog and it was mentioned a PM&R Physician might help.Called Physiatry. They help people recover from injury or…Continue

Started by Gretchen Winchester in Connecting. Last reply by Dan Hicks on Monday.

Two bothersome conditions, probably polio related 2 Replies

As the eldest of four children, with me at age 17, in 1949 all of us got polio. For the youngest two it was more like the flu, and it passed over them. My younger brother was hit the hardest and died…Continue

Started by Larry Kueneman in Symptoms. Last reply by joseph m gifford Sep 3.

Night time leg cramps 1 Reply

I used to take cyclobenzaprin for muscle spasms at night. This made me groggy the next day. Finally my arthritis Dr. prescribed gabapentin. What a relief! I started with 100mg. Then I went to 200 mg.…Continue

Started by Gretchen Winchester in Connecting. Last reply by Dan Hicks Aug 15.

INTERNATIONAL LIVE PPS WEBCAST with Dr. Richard L. Bruno

Save the Date!!Saturday, SEPTEMBER 15, 201810:00 AM US Western Daylight Time1:00 PM US Eastern Daylight Time5:00 PM European/UK GMTGET YOUR QUESTIONS READY!Join the live webcast and get details at…Continue

Started by Salk Institute in Connecting Jul 25.

Night time leg cramps 1 Reply

Does anyone else have night time leg cramps and spasms? They are getting worse I think with age. I do take cyclobenziprin at night ever once in a while. If so what do you do about them.Continue

Started by Gretchen Winchester in Connecting. Last reply by Dan Hicks Jul 22.

For the guys: Flomax

I don't know how many guys are hanging around here, but here is something I learned a few months ago:Flomax (tamsulosin), commonly taken to alleviate urinary constriction due to enlarged prostate, et…Continue

Tags: flomax, prostate, urinary, drugs

Started by Dan Hicks in Connecting Apr 28.

 
 
 

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