PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.

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Cheryl Stanton replied to Gretchen Winchester's discussion CBD oil and Tumeric
"I didn't have any luck with tumeric and black pepper, only mininal results if that so I stopped taking.  Want to try the CBD oil.  Do you take it at night too?  How has it helped?  Does it do anything for the twitching or…"
Jan 5
Gretchen Winchester posted a discussion

CBD oil and Tumeric

I stopped my CBD oil and went to Tumeric for PPS pain because someone recommended it.Didn't work as far as I could tell. I went back on my CBD oil. Didn't realize how well it worked until I stopped it. I went with a stronger dosage. 45 mg in the morning of the original "Charlottes Web". I have decided to still take the Tumeric since it is good for brain function.See More
Jan 5
Dan Hicks posted a discussion

Sleep aid for fatigue? It might actually work!

I'm trying out Diphenhydramine (Benadryl, Sominex) to help my PPS fatigue, and it seems to be working.  Crazy, I know, but taking 50 mg in the morning makes me LESS TIRED in the afternoon.  I kind of happened on this by accident, but a web search bears out that this drug is often prescribed for fatigue and related symptoms, and there is some sound theory behind it.(Understand that I'm NOT talking about taking the drug to improve sleep, but rather to directly improve alertness.)See More
Jan 4
Kay Byard posted a blog post

Late pps - involuntary muscle twitches

15 months ago I lost kidney function and went on hemodialysis at a clinic. In August I went to the overnight cycler which hs been grand!  I have been experiencing muscle spasms, involuntary muscle movement which happens spontaneously day or night. I will be seeing a neurologist nthe end of the month. I suspect the kidney lost with and treatment has activated more pps. I am 78 and up to this point had experienced pps years ago.  My question, has anyone else had this experience. The tremors were…See More
Jan 4
Cheryl Stanton replied to Gretchen Winchester's discussion Numeric
"Yes, I have tried it off and on because alot of people give it good reviews but it was very minimal relief for me. Since that time I have been told i need a hip replacement so with that pain it didn't work. I will try it again after the hip…"
Dec 21, 2017
Gretchen Winchester posted a discussion

Numeric

I have stopped my CBD oil mainly due to cost and have now been trying Tumeric  capsules.My sister in law with fibromyalgia swears by it. She says it takes a few weeks to start working.Anybody else trying this?See More
Dec 21, 2017
Dan Hicks replied to Bill N's discussion Pacemaker and PPS
"Don't know a lot about pacemakers (my heart is apparently one of the few things in my body working correctly), but I do know that a lot of factors can affect fatigue, muscle pain, etc.  I have had times when I was so weak and fatigued I…"
Dec 7, 2017
Bill N posted a discussion

Pacemaker and PPS

HI all,I have a medical condition that my doctor has suggested a pace maker to treat. It's something that is not urgent and at this point may be elective.One benefit night be less fatigue and more energy to do things, but the doctor can't be sure given my post-polio situation.Given my arms and legs tire from over use, I am wondering if I can really make use of having more energy.Does anyone have a pacemaker and did it help with fatigue?Thanks.BillSee More
Dec 6, 2017

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CBD oil and Tumeric 1 Reply

I stopped my CBD oil and went to Tumeric for PPS pain because someone recommended it.Didn't work as far as I could tell. I went back on my CBD oil. Didn't realize how well it worked until I stopped…Continue

Started by Gretchen Winchester in Connecting. Last reply by Cheryl Stanton Jan 5.

Sleep aid for fatigue? It might actually work!

I'm trying out Diphenhydramine (Benadryl, Sominex) to help my PPS fatigue, and it seems to be working.  Crazy, I know, but taking 50 mg in the morning makes me LESS TIRED in the afternoon.  I kind of…Continue

Started by Dan Hicks in Connecting Jan 4.

Numeric 1 Reply

I have stopped my CBD oil mainly due to cost and have now been trying Tumeric  capsules.My sister in law with fibromyalgia swears by it. She says it takes a few weeks to start working.Anybody else…Continue

Started by Gretchen Winchester in Connecting. Last reply by Cheryl Stanton Dec 21, 2017.

Pacemaker and PPS 1 Reply

HI all,I have a medical condition that my doctor has suggested a pace maker to treat. It's something that is not urgent and at this point may be elective.One benefit night be less fatigue and more…Continue

Started by Bill N in Connecting. Last reply by Dan Hicks Dec 7, 2017.

strong gag reflex 4 Replies

I have developed a strong gag reflex that is really affecting my dental appointments, and causes discomfort at other times. Has anyone else had this happen?? it is getting worse as I grow older. just…Continue

Started by joseph m gifford in Connecting. Last reply by joseph m gifford Sep 22, 2017.

trigeminal neuralgia

Has anyone here been diagnosed with "trigeminal neuralgia"?  Over the past year or so I've been having more and more frequent/severe episodes of pain in my jaws, often accompanied by headaches and a…Continue

Started by Dan Hicks in Connecting Aug 21, 2017.

 
 
 

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