PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.

Latest Activity

Barbara York replied to Barbara York's discussion eye muscle damage?
"My eyes have not progressed yet to where I need surgery, but I have difficulty reading much now."
Saturday
Dan Hicks replied to Amy Wu's discussion Breathing pressure
"You probably should get checked by a pulmonologist.  Could be something as simple as strained chest/back muscles from some activity you're doing, but could be signs of pulmonary insufficiency."
Saturday
Dan Hicks replied to Barbara York's discussion eye muscle damage?
"Prior to surgery one should always warn the doctors that PPSers are apt to be hypersensitive to anesthetics.  They should know this, of course, but they may not always connect the dots."
Saturday
Dan Hicks replied to Mary Gerloff's discussion Pain Medication or Muscle Relaxers for Severe Muscle Spasms
"One does need to be careful with sleep aids, as they can lead to the development of fibromyalgia (if you don't already have it) on top of your regular pain. "
Saturday
Amy Wu and susan fuentez are now friends
Thursday
Amy Wu posted a discussion

Breathing pressure

I feel pressured and little pain and sore on my chest area and the same area on the back.  I feel like there something there making my breathing a little difficult. Does anyone have this issue? This issue has been on and off for the past few years. I talked to my family doctor but she doesn't know what is going on. I want to know what can I do with this. What can I check?See More
Thursday
Amy Wu replied to Barbara York's discussion eye muscle damage?
"I have Polio when I was 13 months old. I was diagnostic with PPS when I am 34 years old. Now I am 46. Yes. I had this issue. My  eye muscle doesn't work well. I can’t move it the way I want it to be. I had an…"
Thursday
Amy Wu replied to Mary Gerloff's discussion Pain Medication or Muscle Relaxers for Severe Muscle Spasms
"My PPS started 12 yrs ago. My neurologist provide me with Prozac. It didn't help me. Then I went on with  Gabapentin 100mg 3 times per day and plus Trazodne 50mg for sleep issue. It does help the muscle stiffness and reduce some pain. If I…"
Thursday

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eye muscle damage? 15 Replies

Has anyone else encountered damage to eye muscles due to polio?  My eye doctor has seen this before in polios, but is, of course, in process of ruling out other causes.  However, there  appears to…Continue

Started by Barbara York in Connecting. Last reply by Barbara York on Saturday.

Breathing pressure 1 Reply

I feel pressured and little pain and sore on my chest area and the same area on the back.  I feel like there something there making my breathing a little difficult. Does anyone have this issue? This…Continue

Started by Amy Wu in Connecting. Last reply by Dan Hicks on Saturday.

Pain Medication or Muscle Relaxers for Severe Muscle Spasms 17 Replies

I'm curious as to what others who have PPS use to manage their pain and/or muscle spasms.  I use generic Soma and it helps a lot with the spasms.  I don't have any side effects such as being dizzy or…Continue

Started by Mary Gerloff in Connecting. Last reply by Dan Hicks on Saturday.

Hinged knee replacement

I'm wondering if anyone has had a total knee replacement on affected polio leg.....I had a total knee replacement which is failing do to the tendons & ligaments stretching out again.... after…Continue

Started by Susan Polivka in Connecting Aug 25.

PPS getting worse with age? 4 Replies

After being diagnosed with PPS years ago,now in my 60"s I feel like I am getting morefatigued and weak. Does anyone else notice this or is it just me? Sometimes I feel a little down.Is there anything…Continue

Started by Gretchen Winchester in Connecting. Last reply by Dan Hicks Aug 19.

Post Polio Syndrome 3 Replies

 I have been reading that a lot of post polio victims usually have problems with their limbs and fatigue,. I was wondering if anyone has heard of or is experiences head drop? Can't find anyone to…Continue

Started by Paul Gawrys in Connecting. Last reply by Dan Hicks Aug 16.

 
 
 

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