PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.
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Paddy Craig left a comment for Paddy Craig"Hi everyone. 3 years on since I've been active on this site. I've since had a back op a lami they call it or a fusion. My polio knee konked in and I now wear a knee brace, 18 cm above my knee and 15 cm below the knee. Plus this foot/ankle…"
Donna Baltakis replied to Donna Baltakis's discussion Managing with Polio"The PT folks are really good, I just cannot build any strength. That right leg has atrophied even more in the last 2 years. But I will go back to the neurologist to see about that hamstring, or whatever it is. Thanks and keep your suggestions…"
Dan Hicks replied to Donna Baltakis's discussion Managing with Polio"It's worth a shot at PT with a different therapist, preferably one with pretty good medical training (vs the random guy at the local gym or whatever).
If that doesn't do it you probably need to get the docs to investigate what is causing…"
Constance Sweeney posted a discussionProlia for Osteoporosis?
My osteopenia has progressed to osteoporosis. My doctor wants me to go on Prolia (twice a year shots). Has anyone had any experience with this? I'm so afraid of the side effects!See More
Janet Williams posted a discussionStill kickin'
Hi y'all!!! My name is Janet and it has been a long time since I been here.. Short but cute story - I have had PPS or had been dx'd since 2007 - I am now 58, lost my hubby almost 3 years ago. I have been going through alot of finding my true self. I am so happy and have a wonderful man friend that stays here. It has brought me out of shell is all I can say.I have always had a weight problem but since losing almost 120# has totally helped me alot. I know I will need to use that Power Chair…See More
Donna Baltakis joined Shari Fiksdal's group
International Post Polio Support Organization
Internationl Internet based post polio syndrome support organization. We are here to support and educate those with PPS, we have a bulletin board, website, monthhly Magazine and all are welcome to join us!See More
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Managing with Polio 2 Replies
I had back surgery last year and it went well. However they got me up walking without my brace and ever since then the hamstring in my right (polio) leg is really painful. Less pain with the brace…Continue
Started by Donna Baltakis in Connecting. Last reply by Donna Baltakis Apr 1.
Prolia for Osteoporosis?
My osteopenia has progressed to osteoporosis. My doctor wants me to go on Prolia (twice a year shots). Has anyone had any experience with this? I'm so afraid of the side effects!Continue
Started by Constance Sweeney in Connecting Apr 1.
Still kickin'
Hi y'all!!! My name is Janet and it has been a long time since I been here.. Short but cute story - I have had PPS or had been dx'd since 2007 - I am now 58, lost my hubby almost 3 years ago. I…Continue
Started by Janet Williams in Connecting Apr 1.
Hi, y'all, I'm new here... 10 Replies
...and found this site by googling ADD & polio and Dan Hicks comments came up. Until then I had not known about PPS and have been trying to learn all I can since. I had polio in 1948, age 6 and…Continue
Started by Allen Holleman in Connecting. Last reply by Allen Holleman Mar 29.
2 door cars 6 Replies
Been a full time wheelchair user since 1950 and cars back then were very easy to put the chair in the back seat but over the years cars have gotten smaller and narrower. Have been driving a 97 Monte…Continue
Started by Thomas Maske in Connecting. Last reply by Thomas Maske Mar 29.
Polio Eradication
Read in a local paper: Today is the day (March 27, 2014). For many around the world, celebrations are happening as Southeast Asia is being officially declared polio-free by the Regional Certification…Continue
Started by Thomas Maske in Connecting Mar 28.
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San Diego North PPS Group
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Silicon Valley Post Poli…
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Hemet Area Polio Survivo…
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Post Polio Support Group…
4 members
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San Francisco Bay Area P…
7 members
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