PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.

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Dan Hicks posted a discussion

Anyone else tried hydrochlorothiazide?

My endocrinologist prescribed hydrochlorothiazide (12.5 mg daily) to supposedly reduce my risk for kidney stones (which has been a problem over the years).But after I started taking the pills I found that my pain level was rising.  At first I ignored it, since I have all sorts of reasons for pain (PPS, MADD, arthritis, the kidney stones, etc), but the pain got worse and worse.  It was kind of like the pain I had when I was on statins, but spread a bit more generally around my back and chest,…See More
yesterday
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Francine Falk-Allen posted groups
Dec 3
Dan Hicks replied to florence edelman's discussion Osteoporosis - Loss of Bone Density
"I'm not as disabled as many of you, and I have always been reasonably active.  As of blood tests and X-rays about 4 months ago I do not have osteoporosis.  I have apparently inherited my grandfather's hunch, though."
Sep 29
florence edelman posted a discussion

Osteoporosis - Loss of Bone Density

As a group with limited weight bearing over the years, I am interested if members have been advised to take medication for osteoporosis and if so, what has been your experience with that specific medication. Any fractures of hip, spine or thigh bone ?See More
Sep 29
1 Comment
Dan Hicks replied to Gretchen Winchester's discussion Increased fatigue
"One thing to add:  A few months back I switched from Flomax (for urinary difficulties) to Alfuzosin, mostly because the Flomax causes rhinitis (runny nose).  When my head cleared up it strangely improved my fatigue situation quite a…"
Sep 16
Dan Hicks replied to Gretchen Winchester's discussion Increased fatigue
"I think we've all noticed increased fatigue.  Chronic fatigue syndrome (CFS) kind of comes with PPS.  I did, for a few years, benefit from taking the ADHD drug Strattera (prescribed by a psychiatrist), but the effect got weaker and…"
Sep 16
Gretchen Winchester posted a discussion

Increased fatigue

Has anyone noticed increased fatigue with aging?I read some articles on a PPS blog and it was mentioned a PM&R Physician might help.Called Physiatry. They help people recover from injury or disease.Has anyone gone or benefitted from this?ThanksG WinchesterSee More
Sep 16
2 Comments
joseph m gifford replied to Larry Kueneman's discussion Two bothersome conditions, probably polio related
"Interesting I also have face blindness, I try to look and memorize what people look like and the next time I see them I flat dont remember them. I am pretty good at voice memory and a lot of time when they speak I know who they are. One time I met a…"
Sep 3

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Anyone else tried hydrochlorothiazide?

My endocrinologist prescribed hydrochlorothiazide (12.5 mg daily) to supposedly reduce my risk for kidney stones (which has been a problem over the years).But after I started taking the pills I found…Continue

Tags: hydrochlorothiazide, pain

Started by Dan Hicks in Connecting yesterday.

Osteoporosis - Loss of Bone Density 1 Reply

As a group with limited weight bearing over the years, I am interested if members have been advised to take medication for osteoporosis and if so, what has been your experience with that specific…Continue

Started by florence edelman in Connecting. Last reply by Dan Hicks Sep 29.

Increased fatigue 2 Replies

Has anyone noticed increased fatigue with aging?I read some articles on a PPS blog and it was mentioned a PM&R Physician might help.Called Physiatry. They help people recover from injury or…Continue

Started by Gretchen Winchester in Connecting. Last reply by Dan Hicks Sep 16.

Two bothersome conditions, probably polio related 2 Replies

As the eldest of four children, with me at age 17, in 1949 all of us got polio. For the youngest two it was more like the flu, and it passed over them. My younger brother was hit the hardest and died…Continue

Started by Larry Kueneman in Symptoms. Last reply by joseph m gifford Sep 3.

Night time leg cramps 1 Reply

I used to take cyclobenzaprin for muscle spasms at night. This made me groggy the next day. Finally my arthritis Dr. prescribed gabapentin. What a relief! I started with 100mg. Then I went to 200 mg.…Continue

Started by Gretchen Winchester in Connecting. Last reply by Dan Hicks Aug 15.

INTERNATIONAL LIVE PPS WEBCAST with Dr. Richard L. Bruno

Save the Date!!Saturday, SEPTEMBER 15, 201810:00 AM US Western Daylight Time1:00 PM US Eastern Daylight Time5:00 PM European/UK GMTGET YOUR QUESTIONS READY!Join the live webcast and get details at…Continue

Started by Salk Institute in Connecting Jul 25.

 
 
 

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