"I'm not as disabled as many of you, and I have always been reasonably active. As of blood tests and X-rays about 4 months ago I do not have osteoporosis. I have apparently inherited my grandfather's hunch, though."
PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.
Events
Latest Activity
florence edelman posted a discussionOsteoporosis - Loss of Bone Density
As a group with limited weight bearing over the years, I am interested if members have been advised to take medication for osteoporosis and if so, what has been your experience with that specific medication. Any fractures of hip, spine or thigh bone ?See More
Dan Hicks replied to Gretchen Winchester's discussion Increased fatigue"One thing to add: A few months back I switched from Flomax (for urinary difficulties) to Alfuzosin, mostly because the Flomax causes rhinitis (runny nose). When my head cleared up it strangely improved my fatigue situation quite a…"
Dan Hicks replied to Gretchen Winchester's discussion Increased fatigue"I think we've all noticed increased fatigue. Chronic fatigue syndrome (CFS) kind of comes with PPS. I did, for a few years, benefit from taking the ADHD drug Strattera (prescribed by a psychiatrist), but the effect got weaker and…"
Gretchen Winchester posted a discussionIncreased fatigue
Has anyone noticed increased fatigue with aging?I read some articles on a PPS blog and it was mentioned a PM&R Physician might help.Called Physiatry. They help people recover from injury or disease.Has anyone gone or benefitted from this?ThanksG WinchesterSee More
joseph m gifford replied to Larry Kueneman's discussion Two bothersome conditions, probably polio related"Interesting I also have face blindness, I try to look and memorize what people look like and the next time I see them I flat dont remember them. I am pretty good at voice memory and a lot of time when they speak I know who they are. One time I met a…"
Dan Hicks replied to Gretchen Winchester's discussion Night time leg cramps"One thing to consider if you have leg cramps is your iron level. PPSers tend to have low iron levels, due to rhabdo, and this can cause "restless leg syndrome".
If you suspect this, though, first have your doc check your FERRITIN…"
Gretchen Winchester posted a discussionNight time leg cramps
I used to take cyclobenzaprin for muscle spasms at night. This made me groggy the next day. Finally my arthritis Dr. prescribed gabapentin. What a relief! I started with 100mg. Then I went to 200 mg. No more spasms and cramping. I went online and did some research and come to find out it is recommended for PPS.Give it a try.See More
Badge
Forum
Osteoporosis - Loss of Bone Density 1 Reply
As a group with limited weight bearing over the years, I am interested if members have been advised to take medication for osteoporosis and if so, what has been your experience with that specific…Continue
Started by florence edelman in Connecting. Last reply by Dan Hicks Sep 29.
Increased fatigue 2 Replies
Has anyone noticed increased fatigue with aging?I read some articles on a PPS blog and it was mentioned a PM&R Physician might help.Called Physiatry. They help people recover from injury or…Continue
Started by Gretchen Winchester in Connecting. Last reply by Dan Hicks Sep 16.
Two bothersome conditions, probably polio related 2 Replies
As the eldest of four children, with me at age 17, in 1949 all of us got polio. For the youngest two it was more like the flu, and it passed over them. My younger brother was hit the hardest and died…Continue
Started by Larry Kueneman in Symptoms. Last reply by joseph m gifford Sep 3.
Night time leg cramps 1 Reply
I used to take cyclobenzaprin for muscle spasms at night. This made me groggy the next day. Finally my arthritis Dr. prescribed gabapentin. What a relief! I started with 100mg. Then I went to 200 mg.…Continue
Started by Gretchen Winchester in Connecting. Last reply by Dan Hicks Aug 15.
INTERNATIONAL LIVE PPS WEBCAST with Dr. Richard L. Bruno
Save the Date!!Saturday, SEPTEMBER 15, 201810:00 AM US Western Daylight Time1:00 PM US Eastern Daylight Time5:00 PM European/UK GMTGET YOUR QUESTIONS READY!Join the live webcast and get details at…Continue
Started by Salk Institute in Connecting Jul 25.
Night time leg cramps 1 Reply
Does anyone else have night time leg cramps and spasms? They are getting worse I think with age. I do take cyclobenziprin at night ever once in a while. If so what do you do about them.Continue
Started by Gretchen Winchester in Connecting. Last reply by Dan Hicks Jul 22.
Photos
Groups
-
Pennsylvania Polio Survi…
1 member
-
Riverside Area Polio Sur…
1 member
-
Spartanburg PPS Support…
1 member
-
San Diego North PPS Group
4 members
-
Silicon Valley Post Poli…
3 members
Spread the word about PolioToday.org
|
|
|
Post a flyer: You can let others know about PolioToday.org by downloading this flyer and posting it on a local bulletin board and/or bringing it to your local PPS support group. Invite your friends: You can easily send out email invitations to join PolioToday.org |
© 2018 Created by Salk Institute.
Powered by
