PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.

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Dan Hicks replied to Gretchen Winchester's discussion Lipitor
"It is exceedingly common for folks with PPS to suffer muscle pain (and associated real muscle damage) when taking statins.  Many of us cannot tolerate the drugs for that reason. In my experience the two symptoms you may experience are specific…"
Jul 6
Gretchen Winchester replied to Gretchen Winchester's discussion Lipitor
"I totally stopped taking the Lipitor and feel a whole lot better. My liver enzymes shot up way high so I am now trying to get them back down. What a horrible drug. I have started taking CoQ10 to help. My cholesterol was never that bad to begin with. "
Jul 5
Dan Hicks posted a discussion

Multiple Sclerosis

Has anyone out there been so "fortunate" as to get MS on top of their post-polio symptoms?  I recall reading way back when that some "experts" felt that MS was a bit more common in PPS folks than in the general population.I've got a couple of symptoms that are more suggestive of MS than PPS (and, of course, the vast majority of symptoms overlap the two disorders).See More
Jun 30
Martha Lillard replied to shari Johnston's discussion Sore neck musscles
"Thanks Dan. I have been having such bad pain all over and I'm gonna try ribose. Did any of you on here have complete paralysis originally with Polio as I did? Martha"
Jun 25
lorraine harte updated their profile
Jun 14
Gretchen Winchester posted a blog post

Cannabus

         Has anyone used marijuana for pain and sleep? News story on "Sunday Morning" today sayingseniors over 65 are finding great relief for arthritis pain and help with sleep.See More
May 1
susan fuentez replied to susan fuentez's discussion Low dopamine levels
"thank you for your response. I have an appointment scheduled for today, I am hoping for some answers.. I will share any type of information I receive..."
Apr 27
Dan Hicks replied to susan fuentez's discussion Low dopamine levels
"I've never seen anything specifically regarding dopamine.  (I read Bruno's book many years back but don't recall what he may have said there.) PPSers generally have Chronic Fatigue Syndrome symptoms to a varying degree, of…"
Apr 27

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Lipitor 5 Replies

I have to start taking Lipitor for high cholesterol and the Dr. told me to watch for the side effects of muscle weakness, fatigue etc. I have that already with PPS. How would I know.Has anyone had…Continue

Started by Gretchen Winchester in Connecting. Last reply by Dan Hicks Jul 6.

Multiple Sclerosis

Has anyone out there been so "fortunate" as to get MS on top of their post-polio symptoms?  I recall reading way back when that some "experts" felt that MS was a bit more common in PPS folks than in…Continue

Started by Dan Hicks in Connecting Jun 30.

Sore neck musscles 14 Replies

sore neck muscles, sometimes just one side from ear down into into shoulder, with the muscles in the neck being the most painful. Has anyone else had such an issue? They are very sore to the touch.Continue

Started by shari Johnston in Symptoms. Last reply by Martha Lillard Jun 25.

Low dopamine levels 2 Replies

Hi, im really curious, has any one ever been tested  for low dopamine levels?Does anyone have symptoms of low dopamine levels?It is my understanding that us a polio survivors may not be able to…Continue

Started by susan fuentez in Connecting. Last reply by susan fuentez Apr 27.

stance control KAFO 4 Replies

hello,i am considering a stance control KAFO to replace a regular KAFO.  has anyone done this?  and if so, what pros/cons did you experience?thank you,thomasContinue

Started by thomas m blastic in Connecting. Last reply by thomas m blastic Apr 2.

Relaxing with beer 3 Replies

So, is there anyone else out there who finds that having a good home-brew or micro-brew (unpasteurized so all the healthy yeasts and B vitamins are active and beneficial) to be a great muscle…Continue

Started by Margaret G Carson in Connecting. Last reply by Dan Hicks Feb 15.

 
 
 

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