PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.

Events

Latest Activity

thomas m blastic left a comment for Sandra Bowman
"hi sandy, appreciate your response.  I do not know of any other people with PPS here.  my doc has said he has another patient with PPS and with HIPPA he can't really give me a name.  I use to check PPS website more…"
Jun 28
Sandra Bowman left a comment for thomas m blastic
"Got your note.  Are there others in this area who have PPS?  Your Dr Carter is super....  He doesn't take new patients from what I hear.   I pretty much tolerate my PPS problems and  keep on moving.  My Dr is…"
Jun 20
thomas m blastic left a comment for Sandra Bowman
"hello Sandra, am looking for individuals locally with PPS.  am currently seeing dr. Dallas Carter from NBMC as primary care physician.  I live in north bend.  my phone number is 541-404-4464.  am currently having increased…"
Jun 19
Dan Hicks posted a discussion

For the guys: Flomax

I don't know how many guys are hanging around here, but here is something I learned a few months ago:Flomax (tamsulosin), commonly taken to alleviate urinary constriction due to enlarged prostate, et al, causes some fairly significant side-effects.  The most notable of these is nasal congestion.  But there is another drug, alfuzosin, which is almost as effective as Flomax while causing very little (if any) nasal congestion.But more interesting still is the fact that when I began taking…See More
Apr 28
Dan Hicks replied to Gretchen Winchester's discussion CBD oil and Tumeric
"Interesting -- I might actually try it!"
Apr 28
Carolyn Mitchell replied to Gretchen Winchester's discussion CBD oil and Tumeric
"Haven’t been on this site in awhile. A year ago, someone insisted I try the turmeric tea (called detox tea on the internet). It has help me tremendously, especially with fatigue and “brain fog”. The only side effect for me so far…"
Apr 27
JAMES E DAVIS JR updated their profile
Apr 11
Rolf Henriks updated their profile
Feb 25

Badge

Loading…
 

Members

Forum

For the guys: Flomax

I don't know how many guys are hanging around here, but here is something I learned a few months ago:Flomax (tamsulosin), commonly taken to alleviate urinary constriction due to enlarged prostate, et…Continue

Tags: flomax, prostate, urinary, drugs

Started by Dan Hicks in Connecting Apr 28.

CBD oil and Tumeric 3 Replies

I stopped my CBD oil and went to Tumeric for PPS pain because someone recommended it.Didn't work as far as I could tell. I went back on my CBD oil. Didn't realize how well it worked until I stopped…Continue

Started by Gretchen Winchester in Connecting. Last reply by Dan Hicks Apr 28.

Sleep aid for fatigue? It might actually work!

I'm trying out Diphenhydramine (Benadryl, Sominex) to help my PPS fatigue, and it seems to be working.  Crazy, I know, but taking 50 mg in the morning makes me LESS TIRED in the afternoon.  I kind of…Continue

Started by Dan Hicks in Connecting Jan 4.

Numeric 1 Reply

I have stopped my CBD oil mainly due to cost and have now been trying Tumeric  capsules.My sister in law with fibromyalgia swears by it. She says it takes a few weeks to start working.Anybody else…Continue

Started by Gretchen Winchester in Connecting. Last reply by Cheryl Stanton Dec 21, 2017.

Pacemaker and PPS 1 Reply

HI all,I have a medical condition that my doctor has suggested a pace maker to treat. It's something that is not urgent and at this point may be elective.One benefit night be less fatigue and more…Continue

Started by Bill N in Connecting. Last reply by Dan Hicks Dec 7, 2017.

strong gag reflex 4 Replies

I have developed a strong gag reflex that is really affecting my dental appointments, and causes discomfort at other times. Has anyone else had this happen?? it is getting worse as I grow older. just…Continue

Started by joseph m gifford in Connecting. Last reply by joseph m gifford Sep 22, 2017.

 
 
 

Photos

  • Add Photos
  • View All

Spread the word about PolioToday.org



Post a flyer: You can let others know about PolioToday.org by downloading this flyer and posting it on a local bulletin board and/or bringing it to your local PPS support group.

Invite your friends: You can easily send out email invitations to join PolioToday.org


© 2018   Created by Salk Institute.   Powered by

Badges  |  Report an Issue  |  Terms of Service