PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.

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Dan Hicks posted a discussion

PPS and pancreatitis?

I'm wondering if anyone here has been diagnosed with pancreatitis -- a (usually chronic) inflammation of the pancreas.  Symptoms are pain, fatigue, progressive neuropathy, and several others.  (Sound familiar?)  Jaundice or diabetes may or may not be present.  And there is intriguing evidence that polio may sometimes be involved in the development and progression of the disease.  Yet I've never see any mention of pancreatitis as a possible cause of PPS symptoms.The most notable signs of…See More
Mar 25
Gretchen Winchester posted a blog post

Bone loss

Has anybody been doing the twice a year IV for bone loss? If so any side effects?Gretchen WinchesterSee More
Mar 11
Martha Lillard left a comment for Ted Granger
"Is anyone on here anymore?"
Feb 17
Joy Quyle posted a status
"I use magnesium for leg cramps and irregular heartbeats. Has worked for me"
Dec 19, 2018
Profile IconJoy Quyle, Kathy Marrella, Alwyn (Marty) Ball and 7 more joined Polio Today
Dec 18, 2018
Dan Hicks posted a discussion

Anyone else tried hydrochlorothiazide?

My endocrinologist prescribed hydrochlorothiazide (12.5 mg daily) to supposedly reduce my risk for kidney stones (which has been a problem over the years).But after I started taking the pills I found that my pain level was rising.  At first I ignored it, since I have all sorts of reasons for pain (PPS, MADD, arthritis, the kidney stones, etc), but the pain got worse and worse.  It was kind of like the pain I had when I was on statins, but spread a bit more generally around my back and chest,…See More
Dec 14, 2018
Francine Falk-Allen posted groups
Dec 3, 2018
Dan Hicks replied to florence edelman's discussion Osteoporosis - Loss of Bone Density
"I'm not as disabled as many of you, and I have always been reasonably active.  As of blood tests and X-rays about 4 months ago I do not have osteoporosis.  I have apparently inherited my grandfather's hunch, though."
Sep 29, 2018

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PPS and pancreatitis?

I'm wondering if anyone here has been diagnosed with pancreatitis -- a (usually chronic) inflammation of the pancreas.  Symptoms are pain, fatigue, progressive neuropathy, and several others.  (Sound…Continue

Tags: pancreas

Started by Dan Hicks in Symptoms Mar 25.

Anyone else tried hydrochlorothiazide?

My endocrinologist prescribed hydrochlorothiazide (12.5 mg daily) to supposedly reduce my risk for kidney stones (which has been a problem over the years).But after I started taking the pills I found…Continue

Tags: hydrochlorothiazide, pain

Started by Dan Hicks in Connecting Dec 14, 2018.

Osteoporosis - Loss of Bone Density 1 Reply

As a group with limited weight bearing over the years, I am interested if members have been advised to take medication for osteoporosis and if so, what has been your experience with that specific…Continue

Started by florence edelman in Connecting. Last reply by Dan Hicks Sep 29, 2018.

Increased fatigue 2 Replies

Has anyone noticed increased fatigue with aging?I read some articles on a PPS blog and it was mentioned a PM&R Physician might help.Called Physiatry. They help people recover from injury or…Continue

Started by Gretchen Winchester in Connecting. Last reply by Dan Hicks Sep 16, 2018.

Two bothersome conditions, probably polio related 2 Replies

As the eldest of four children, with me at age 17, in 1949 all of us got polio. For the youngest two it was more like the flu, and it passed over them. My younger brother was hit the hardest and died…Continue

Started by Larry Kueneman in Symptoms. Last reply by joseph m gifford Sep 3, 2018.

Night time leg cramps 1 Reply

I used to take cyclobenzaprin for muscle spasms at night. This made me groggy the next day. Finally my arthritis Dr. prescribed gabapentin. What a relief! I started with 100mg. Then I went to 200 mg.…Continue

Started by Gretchen Winchester in Connecting. Last reply by Dan Hicks Aug 15, 2018.

 
 
 

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