PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.

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Scott Dixon updated their profile
18 hours ago
Erik Hvide replied to Susan Polivka's discussion Hinged knee replacement
"Hi Sue, Yes I have one hinged knee and one standard knee. There is in my opinion no question for a post-polio that the hinged is the way to go. The surgeon almost didn't want to do the second knee because of the muscle weakness but I insisted.…"
22 hours ago
PAMELA SWIFT-LATOUR commented on Jeanne W. Houghton's photo
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March of Dimes Poster Kid 1948

"HOW FUNNY. I WAS A POSTER KID. DON'T KNOW THE YEAR. BUT WAS ASKED TO SAY SOMETHING ON STAGE AND DIDN'T SAY ANYTHING. WAS SCARE TO DEATH. SOME MAN PICKED ME UP TO THE MICROPHONE."
Saturday
PAMELA SWIFT-LATOUR left a comment for Barbara M Wichlan
"I KNOW HAVING POLIO HAS MADE ME A STRONGER PERSON. I GOT IT IN 54. WAS IN IRON LUNG FOR 18 MONTHS. LOTS OF SURGERIES HAD MY SPINE ALL FUSED WITH TITANIUM. CAN'T BEND OVER OVER FOR......I'M 64. LIVE IN SOUTHERN CALIF."
Saturday
PAMELA SWIFT-LATOUR left a comment for Sandra Tambash
"I GOT POLIO IN 54. JUST TURNED 4. HAVE A WALKING STICK AND I PLASTIC FOOT BRACE. MY LEFT SIDE GOT IT THE WORSE. I FEEL YOUR ISOLATION. EVEN THOUGH I HAVE A BIG FAMILY NO ONE REALLY UNDERSTANDS WHAT I GO THROUGH EVERYDAY. WAS IN IRON LUNG FOR 18…"
Saturday
PAMELA SWIFT-LATOUR left a comment for Ann Monson
"YOU GOT POLIO THE SAME YEAR AS I DID. I HAD JUST TURNED 4. WAS IN IRON LUNG FOR 18 MONTHS. HOW OLD R U NOW ? I HAD MANY MANY OPERATIONS. WHERE DO U LIVE. I'M IN SOUTHERN CALIF.  "
Saturday
Profile IconClifford W. Wolf, Jr., Julie Kaston, Ann Monson and 2 more joined Polio Today
Sep 23
Salk Institute posted a discussion

Take part in a Polio Genomics Study

Hi everyone,I was contacted by Mark Loeb from McMaster University.  He is conducting a study to find out whether there was a genetic susceptibility that led some people to develop paralysis following infection with the polio virus.  If you are a polio survivor you may be interested in taking part in this study.  This would mean completing a questionnaire and sending us a saliva sample. Participating would help us to gain important knowledge and understanding about why some people developed…See More
Sep 22

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Hinged knee replacement 8 Replies

I'm wondering if anyone has had a total knee replacement on affected polio leg.....I had a total knee replacement which is failing do to the tendons & ligaments stretching out again.... after…Continue

Started by Susan Polivka in Connecting. Last reply by Erik Hvide 22 hours ago.

Take part in a Polio Genomics Study

Hi everyone,I was contacted by Mark Loeb from McMaster University.  He is conducting a study to find out whether there was a genetic susceptibility that led some people to develop paralysis following…Continue

Started by Salk Institute in Connecting Sep 22.

Survey 5 Replies

I have a problem with curiosity and I have one question that entered my mind about 20 years ago, and that was "what is the longetivity of a person who has had polio?" I knew it had to depend on the…Continue

Started by Thomas Maske in Connecting. Last reply by Susan Polivka Sep 11.

Latest Issue of InsideSalk

The feature story in the latest issue of our magazine, InsideSalk honors the legacy of Jonas Salk.  We will be Please join our celebration of "Jonas Salk - 100 years" and read the issue online at…Continue

Started by Salk Institute in Connecting Sep 8.

eye muscle damage? 15 Replies

Has anyone else encountered damage to eye muscles due to polio?  My eye doctor has seen this before in polios, but is, of course, in process of ruling out other causes.  However, there  appears to…Continue

Started by Barbara York in Connecting. Last reply by Barbara York Aug 30.

Breathing pressure 1 Reply

I feel pressured and little pain and sore on my chest area and the same area on the back.  I feel like there something there making my breathing a little difficult. Does anyone have this issue? This…Continue

Started by Amy Wu in Connecting. Last reply by Dan Hicks Aug 30.

 
 
 

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