PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.

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susan fuentez replied to susan fuentez's discussion Low dopamine levels
"thank you for your response. I have an appointment scheduled for today, I am hoping for some answers.. I will share any type of information I receive..."
yesterday
Dan Hicks replied to susan fuentez's discussion Low dopamine levels
"I've never seen anything specifically regarding dopamine.  (I read Bruno's book many years back but don't recall what he may have said there.) PPSers generally have Chronic Fatigue Syndrome symptoms to a varying degree, of…"
yesterday
susan fuentez posted a discussion

Low dopamine levels

Hi, im really curious, has any one ever been tested  for low dopamine levels?Does anyone have symptoms of low dopamine levels?It is my understanding that us a polio survivors may not be able to produce the hormone dopamine, due to the neurons in our brain being damaged ( I read this in the polio paradox book by Rchard Bruno) .I am experiencing loss of focus, loss in memory, no motivation, etc... signs of low levels of dopamine...If anyone can offer some insight I would really appreciate it...I…See More
Tuesday
Jack Saiken shared Marilyn Loba's group on Facebook
Apr 16
Dan Hicks replied to Gretchen Winchester's discussion Lipitor
"One final point:  If you do decide to take a statin, you should strongly consider also taking a Coenzyme Q-10 supplement as well.  This supplement significantly reduces the stress that the statin places on the muscles (though for me it…"
Apr 9
Dan Hicks replied to Gretchen Winchester's discussion Lipitor
"Another symptom to watch for is "myoglobinuria", the appearance of a dark brown substance in your urine.   This can make the urine cloudy or may rapidly settle out in the toilet bowl, looking like rust that settled out of the…"
Apr 5
Dan Hicks replied to Gretchen Winchester's discussion Lipitor
"For folks with PPS, the odds of having significant side-effects from statins are quite high (I believe I once worked it out to be at least 20%).  Unfortunately, if you have PPS it is hard to tell if statins are giving you side-effects, since…"
Apr 3
Gretchen Winchester posted a discussion

Lipitor

I have to start taking Lipitor for high cholesterol and the Dr. told me to watch for the side effects of muscle weakness, fatigue etc. I have that already with PPS. How would I know.Has anyone had trouble taking Lipitor. See More
Apr 3

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Low dopamine levels 2 Replies

Hi, im really curious, has any one ever been tested  for low dopamine levels?Does anyone have symptoms of low dopamine levels?It is my understanding that us a polio survivors may not be able to…Continue

Started by susan fuentez in Connecting. Last reply by susan fuentez yesterday.

Lipitor 3 Replies

I have to start taking Lipitor for high cholesterol and the Dr. told me to watch for the side effects of muscle weakness, fatigue etc. I have that already with PPS. How would I know.Has anyone had…Continue

Started by Gretchen Winchester in Connecting. Last reply by Dan Hicks Apr 9.

stance control KAFO 4 Replies

hello,i am considering a stance control KAFO to replace a regular KAFO.  has anyone done this?  and if so, what pros/cons did you experience?thank you,thomasContinue

Started by thomas m blastic in Connecting. Last reply by thomas m blastic Apr 2.

Sore neck musscles 13 Replies

sore neck muscles, sometimes just one side from ear down into into shoulder, with the muscles in the neck being the most painful. Has anyone else had such an issue? They are very sore to the touch.Continue

Started by shari Johnston in Symptoms. Last reply by Kay Mar 31.

Relaxing with beer 3 Replies

So, is there anyone else out there who finds that having a good home-brew or micro-brew (unpasteurized so all the healthy yeasts and B vitamins are active and beneficial) to be a great muscle…Continue

Started by Margaret G Carson in Connecting. Last reply by Dan Hicks Feb 15.

Muscle cramps/spasms? 4 Replies

I am getting some VERY SEVERE muscle spasms in my right hip.  This is of the sudden "electric shock" variety, only these are more like electrocution -- when one hits I almost fall down, and one could…Continue

Started by Dan Hicks in Symptoms. Last reply by Dan Hicks Jan 7.

 
 
 

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