PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.

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Sandra Tambash updated their profile
Jan 30
Dan Hicks replied to Dan Hicks's discussion Muscle cramps/spasms?
"Well, after another couple of weeks, the pain has finally mostly resolved, such that now I can sleep on that hip.  I strongly suspect that the severe, prolonged muscle spasms caused some myopathy (just as polio spasms did originally), and that…"
Jan 7
Rick E. Kneeshaw, M.A. commented on Gladys Swensrud's group San Diego Polio Survivors
"Our January meeting is canceled due to building damage caused by heavy rain and parking lot flooding. The next meeting will be March 12th, 2016. Rick E. Kneeshaw, M.A. Facilitator San Diego Polio Survivors"
Jan 6
Dan Hicks replied to Dan Hicks's discussion Muscle cramps/spasms?
"Update:  It's settled down, mostly.  After 3 nights of the bad "shocks" it turned into more of a pain/ache across my entire buttocks, then to a pain just in one specific region (right where the "shocks" seemed…"
Dec 19, 2015
Dan Hicks replied to Dan Hicks's discussion Muscle cramps/spasms?
"I've researched this a bit and I'm fairly well convinced that it's "piriformis syndrome".  Does anyone have any experience with this condition?"
Dec 14, 2015
Cheryl Stanton replied to Dan Hicks's discussion Muscle cramps/spasms?
"I get those in my calfs and different parts of legs, When that happens I take more magnesium and it seems to stop them.  "
Dec 10, 2015
Dan Hicks posted a discussion

Muscle cramps/spasms?

I am getting some VERY SEVERE muscle spasms in my right hip.  This is of the sudden "electric shock" variety, only these are more like electrocution -- when one hits I almost fall down, and one could be fatal if it hit me on the stairs.This has come and gone for years, but in the past week has gotten much worse, especially at night when I'm getting into/out of bed.  They abate during the day but then return in the evening, making it hard to sleep.Does anyone have any suggestions?See More
Dec 10, 2015
Dan Hicks replied to Dan Hicks's discussion How to get an AFO?
"To kind of complete the story, I found some suitable stockings at a local medical supply store.  What I bought were Jobst SensiFoot "diabetic socks".  These are white, knee-high acrylic socks -- thin but with a little padding,…"
Nov 13, 2015

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Muscle cramps/spasms? 4 Replies

I am getting some VERY SEVERE muscle spasms in my right hip.  This is of the sudden "electric shock" variety, only these are more like electrocution -- when one hits I almost fall down, and one could…Continue

Started by Dan Hicks in Symptoms. Last reply by Dan Hicks Jan 7.

How to get an AFO? 5 Replies

I'm a "mildly affected" PPSer who has up to this point not used any orthotics.  (In fact, I don't have a "polio doc" of any kind.)It's getting to the point, though, where I could probably use an AFO…Continue

Started by Dan Hicks in Connecting. Last reply by Dan Hicks Nov 13, 2015.

Survey 18 Replies

I have a problem with curiosity and I have one question that entered my mind about 20 years ago, and that was "what is the longetivity of a person who has had polio?" I knew it had to depend on the…Continue

Started by Thomas Maske in Connecting. Last reply by Susan Polivka Oct 18, 2015.

stance control KAFO

hello,i am considering a stance control KAFO to replace a regular KAFO.  has anyone done this?  and if so, what pros/cons did you experience?thank you,thomasContinue

Started by thomas m blastic in Connecting Oct 17, 2015.

Aqua therapy

 Hi, has anyone done aqua therapy for PPS and what were the results. I'm wondering if it was just temporary while in the water or were there long term results, thanking you in advance for your…Continue

Started by Cheryl Stanton in Connecting Oct 16, 2015.

Bios Living Compression Pump 4 Replies

Hi,First timer here - has anyone used one of these? I'm having a lot of ankle and foot problems. I have PPS doctor to ask about this product. It sounds good, but ever the skeptic.....Continue

Started by Marie Heaster in Support Groups. Last reply by Dan Hicks Sep 22, 2015.

 
 
 

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