PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.

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JAMES E DAVIS JR and Carolyn Mitchell are now friends
6 hours ago
JAMES E DAVIS JR replied to Linda Wincenc Dobkin's discussion Knee surgery on "good" leg--yes or no?
"Linda I greatly admire your positive attitude! It is uplifting for me as I feel strongly about the quality of life for my fellow PPS "family". Yes, you are all like a special family to me. I know what you mean about the lift for you…"
7 hours ago
Linda Wincenc Dobkin replied to Linda Wincenc Dobkin's discussion Knee surgery on "good" leg--yes or no?
"Hi all--It's been 15 months since I posted my question. After conferring with surgeons (they are all for the surgery, naturally) and physiatrists and PT's familiar with PPS, I have made the decision not to have knee surgery on my good leg.…"
yesterday
shari Johnston replied to Linda Wincenc Dobkin's discussion Knee surgery on "good" leg--yes or no?
"Hi Linda, I am curious if you ever had the surgery? I haven't been on here in sometime so have missed your inquiry. I am post TKR four months and it is slow going, but I am told that is to be expected. My biggest issue I am dealng with is that…"
yesterday
shari Johnston and Susan Polivka are now friends
Sunday
shari Johnston replied to Barbara Angelica Crowe's discussion Fatigue and Shakes
"Yes I have done that, it amounts to 3/4 of an inch now, however I am finding it heavy to lift with my small leg, I often wore light weight clogs before but you can't put a lift on them. I become tired so remove my boots and that is usually when…"
Sunday
Dan Hicks replied to Barbara Angelica Crowe's discussion Fatigue and Shakes
"It seems to me that lifts on the "small leg" shoe should be considered to even out your stance."
Saturday
shari Johnston replied to Barbara Angelica Crowe's discussion Fatigue and Shakes
"I am four months post TKR and am having a lot of pain still, plus my small leg slips at times and the other with the TKR can't hold me up and I am having some very painful falls, and am worried about the replacement and my what was my good leg.…"
Saturday

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Knee surgery on "good" leg--yes or no? 5 Replies

I am looking for support in my decision to have TKR on my good leg. How are those of you who have had this surgery doing now? Are you glad you had it done? Did rehab make your polio leg worse? My…Continue

Started by Linda Wincenc Dobkin in Connecting. Last reply by JAMES E DAVIS JR 7 hours ago.

Fatigue and Shakes 12 Replies

I seem to be having some different weakness on my strong side.  Since my knee replacement last year (on my strong side), I have less energy and often tremble after walking from the car to the front…Continue

Started by Barbara Angelica Crowe in Connecting. Last reply by shari Johnston on Sunday.

Survey 6 Replies

I have a problem with curiosity and I have one question that entered my mind about 20 years ago, and that was "what is the longetivity of a person who has had polio?" I knew it had to depend on the…Continue

Started by Thomas Maske in Connecting. Last reply by Greg Nedrow Dec 11.

Received Disability

I have received by award letter after one attempt and no professional assistance. My suggestions are answer all questions honestly and completely, and complete all parts of the application.  Do not…Continue

Started by Carolyn Mitchell in Connecting Nov 23.

Colorado "mystery illness" 4 Replies

Anyone been following this?  (…Continue

Started by Dan Hicks in Connecting. Last reply by Dan Hicks Nov 15.

Take part in a Polio Genomics Study 1 Reply

Hi everyone,I was contacted by Mark Loeb from McMaster University.  He is conducting a study to find out whether there was a genetic susceptibility that led some people to develop paralysis following…Continue

Started by Salk Institute in Connecting. Last reply by Thomas Maske Oct 9.

 
 
 

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