"Try the "Post Polio Syndrome" group on Facebook: https://www.facebook.com/groups/19604805616/"
PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors.
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Albuquerque, New Mexico
Is there a Polio support group in Albuquerque, NM?See More
PPS and pancreatitis?
I'm wondering if anyone here has been diagnosed with pancreatitis -- a (usually chronic) inflammation of the pancreas. Symptoms are pain, fatigue, progressive neuropathy, and several others. (Sound familiar?) Jaundice or diabetes may or may not be present. And there is intriguing evidence that polio may sometimes be involved in the development and progression of the disease. Yet I've never see any mention of pancreatitis as a possible cause of PPS symptoms.The most notable signs of…See More
"I use magnesium for leg cramps and irregular heartbeats. Has worked for me"
Anyone else tried hydrochlorothiazide?
My endocrinologist prescribed hydrochlorothiazide (12.5 mg daily) to supposedly reduce my risk for kidney stones (which has been a problem over the years).But after I started taking the pills I found that my pain level was rising. At first I ignored it, since I have all sorts of reasons for pain (PPS, MADD, arthritis, the kidney stones, etc), but the pain got worse and worse. It was kind of like the pain I had when I was on statins, but spread a bit more generally around my back and chest,…See More
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Albuquerque, New Mexico 1 Reply
Is there a Polio support group in Albuquerque, NM?Continue
Started by Gretchen Winchester in Connecting. Last reply by Dan Hicks May 29.
PPS and pancreatitis?
I'm wondering if anyone here has been diagnosed with pancreatitis -- a (usually chronic) inflammation of the pancreas. Symptoms are pain, fatigue, progressive neuropathy, and several others. (Sound…Continue
Tags: pancreas
Started by Dan Hicks in Symptoms Mar 25.
Anyone else tried hydrochlorothiazide?
My endocrinologist prescribed hydrochlorothiazide (12.5 mg daily) to supposedly reduce my risk for kidney stones (which has been a problem over the years).But after I started taking the pills I found…Continue
Tags: hydrochlorothiazide, pain
Started by Dan Hicks in Connecting Dec 14, 2018.
Osteoporosis - Loss of Bone Density 1 Reply
As a group with limited weight bearing over the years, I am interested if members have been advised to take medication for osteoporosis and if so, what has been your experience with that specific…Continue
Started by florence edelman in Connecting. Last reply by Dan Hicks Sep 29, 2018.
Increased fatigue 2 Replies
Has anyone noticed increased fatigue with aging?I read some articles on a PPS blog and it was mentioned a PM&R Physician might help.Called Physiatry. They help people recover from injury or…Continue
Started by Gretchen Winchester in Connecting. Last reply by Dan Hicks Sep 16, 2018.
Two bothersome conditions, probably polio related 2 Replies
As the eldest of four children, with me at age 17, in 1949 all of us got polio. For the youngest two it was more like the flu, and it passed over them. My younger brother was hit the hardest and died…Continue
Started by Larry Kueneman in Symptoms. Last reply by joseph m gifford Sep 3, 2018.
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